The following is a list of websites which our patients have found useful, please note that the South West Cleft Service is not responsible for the content of external websites.
22q11/VCFS (Velo-Cardio Facial Syndrome/de George Syndrome)
US website with lots of useful information: http://www.vcfsef.org/
Handbook produced by Max Appeal: http://www.maxappeal.org.uk/
Behaviour
http://www.nspcc.org.uk/help-and-advice/for-parents-and-carers/positive-parenting/encouraging-better-behaviour/encouraging-better-behaviour_wda72886.html Benefits
Benefits, Tax Credits and other financial help (Contact a Family): http://www.cafamily.org.uk/
Bullying
http://www.bullying.co.uk/
http://www.childline.org.uk/
www.kidscape.org.uk/childrenteens
http://www.bullying.org/
http://www.antibullying.net/
Changing Faces (voluntary organisation working to improve things for people with visible differences or disfigurement)
http://www.changingfaces.org.uk/
CLAPA (voluntary organisation supporting people with clefts and their families): http://www.clapa.com/
Craniofacial Conditions
http://www.headlines.org.uk/
Disability/Special Needs
http://www.dlf.org.uk/ Disabled Living Foundation.
http://www.guide-information.org.uk/ Guide Information Service
Adult Learning disabilities
http://www.bild.org.uk/
Ears
http://www.ndcs.org.uk/ The National Deaf Children’s Society.
Face Forward
http://www.faceforward.org.uk/ – (Chat room for parents and adults with a cleft)
Fathers
Positive Parenting www.parenting.org.uk/
Feeding
My Child Still Won’t Eat www.bda.uk.com/Downloads/Order_Form_Oct06.pdf
Genetics
Genetic Interest Group: http://www.gig.org.uk/
Homestart
http://www.home-start.org.uk/ support at home for preschool parents
Parenting
http://www.mumsnet.com/
http://familylives.org.uk/free-resources Siblings
Sibs - Information for adult siblings http://www.sibs.org.uk/
Toileting
ERIC (voluntary organisation providing equipment, support and information): http://www.eric.org.uk/
Transition
http://www.after16.org.uk/ The Family Fund.