We normally offer patients the opportunity to take part in a pair of meetings called the “Foundation Phase” seminars. This short course has a number of aims, including:
• clarifying the symptoms of ME/CFS
• exploring in depth some of the key ME/CFS self-management areas
• sharing coping strategies between patients coming to the seminars
• finding ways of reducing the impact of the condition
The seminars have been developed with a lot of patient involvement and feedback, and each seminar we run involves sharing knowledge and experience which patients have already developed.
As of March 2020, we have had to stop offering these seminars to reduce the risk of Covid-19 infection. We have put together this short online course, so that people can still access the ideas from the Foundation Phase seminars.
The first seminar is split into two parts. The first part clarifies the symptoms, consequences and triggers. The second part looks at activity management, particularly as a way of managing post-exertional malaise.
The second seminar is split into two parts as well. The first part is a short introduction to the impact of stress and the role of stress management. The second part is longer and focusses on sleep management.
We have made the workbooks which support these seminars available as PDF documents which you can download below. There are also activity diaries available, and some guidance about completing an activity diary, which you can download as a PDF document.
Foundation session 1 part 1
Foundation session 1 part 2
Foundation session 2 part 1
Foundation session 2 part 2
We hope that you will be able to have a look at these talks between your first (assessment) appointment, and when you have a follow-up appointment with your clinician.
Please note that the NHS is in the process of changing from using the term CFS/ME to ME/CFS, so some of our information still uses the previous term, CFS/ME.