SWNODN Publications for Professionals

The South West Neuromuscular Operational Delivery Network (SWNODN) aims to become a central resource for patients, members of the public and health and social care professionals, by pulling together useful links and information into one place.  In this section you will be able to view our SWNODN publications and Clinical Guidelines related to neuromuscular conditions.

A Guide to the SW Neuromuscular ODN 

South West Interest in Muscles (SWIM) Bulletins

GP Neuromuscular News Bulletins

Clinical Guidelines & Papers

2017

Guidance for Paediatric Physiotherapists Managing Neuromuscular Disorders. APCP Neuromuscular Committee. March 2017

2016

Transition from children's to adults' services for young people using health or social care services. NICE Guidelines. 24 February 2016

Transition from children's to adults' services. NICE Quality Standards. 21 December 2016

2015

The NorthStar Ambulatory Assessment in Duchenne Muscular Dystrophy: Considerations for the Design of Clinical Trials.  J Neurol Neurosurg Psychiatry 2015; 0:1-7

Adult care for Duchenne Muscular Dystrophy in the UK. J Neurol 2015; 262: 629-641

All Party Parliamentary Group for Muscular Dystrophy Impact of NHS reforms on access to neuromuscular services. March 2015

2014

Frequency and circumstances of falls in people with inclusion body myositis: A questionnaire survey to explore falls management and physiotherapy provision. Physiotherapy 100 2014; 61-65

2012

Validation of the Charcot-Marie-Tooth disease paediatric scale as an outcome measure of disability.  Ann Neurol 2012: 71(5): 642-52

2010

Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management. Lancet Neurol 2010; 9:77-93

Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care. Lancet Neurol 2010; 9:177-189.

2009

Guidelines for the physiotherapy management of the adult, medical, spontaneously breathing patient. Thorax 2009; 64: Suppl 1 i1-i51

2008

Update on the management of Duchenne muscular dystrophy. Arch Dis Child 2008; 93:986-990.

2005

Cardiovascular health supervision for individuals affected by Duchenne or Becker muscular dystrophy. Paediatrics 2005; 116:1569-1573.

2004

Respiratory care of the patient with Duchenne muscular dystrophy. ATS consensus statement. Am J Respir Crit Care Med 2004; 170:456-465.

BTS Guidelines-Respiratory Management of Children with Neuromuscular Weakness Guidelines

BTS Guidelines-Respiratory Management of Children with Neuromuscular Weakness Quality Standards

Consensus Statement on Standard of Care for Spinal Muscular Atrophy

Consensus Statement on Standard of Care for Congenital Muscular Dystrophies & Family Guide