SWNODN Publications

The South West Neuromuscular Operational Delivery Network (SWNODN) aims to become a central resource for patients, members of the public and health and social care professionals, by pulling together useful links and information into one place.  In this section you will be able to view our SWNODN publications and Clinical Guidelines related to neuromuscular conditions.

For more information about the SWNODN, please read our patient guide: 

SWNODN Neuromuscular Newsletters

We produce newsletters for patients who are on our Network mailing list, to provide the latest information on the Network team and their activities, and also provide resourceful information to patients through interesting articles and giving details of events happening in their area. 


Most recent newsletter

Download the most recent copy of the SWNODN newsletter here:



Previous newsletters









Clinical Guidelines & Resources


- A leaflet providing advice and guidance on transitioning from paediatric services to adult services.  For further information for young people who are at transition age, please visit these pages on the University Hospitals Bristol website, which the Neuromuscular Advisors have contributed to:   www.uhbristol.nhs.uk/transition/neuromuscular/


- This advice leaflet is designed for parents and children to read together, giving breathing techniques and guidance for children who have a neuromuscular condition that may affect respiratory function.


A guidance leaflet on breathing and non-invasive ventilation (NIV) for children from the age of two years old living with a neuromuscular condition.  This leaflet has been designed to answer some questions you may have about how your breathing may be affected by a neuromuscular condition.


- A leaflet giving information and advice on steroid medication for children who have Duchenne Muscular Dystrophy


External Publications

All Party Parliamentary Group for Muscular Dystrophy: Impact of NHS reforms on access to neuromuscular services. March 2015

All Party Parliamentary Group for Muscular Dystrophy: Access to psychological support for people with neuromuscular conditions.  November 2018

Spinal Muscular Atrophy route map - A resource devloped by the support services team at Spinal Muscular Atrophy UK (SMA UK).  It is based on the issues, concerns and personal experience of parents and individuals with SMA, and the contributions of healthcare professionals with experience and expertise of this condition.