SWNODN Publications

The South West Neuromuscular Operational Delivery Network (SWNODN) aims to become a central resource for patients, members of the public and health and social care professionals, by pulling together useful links and information into one place.  In this section you will be able to view our SWNODN publications and Clinical Guidelines related to neuromuscular conditions.

For more information about the SWNODN, please read our patient guide: PDF iconSWNODN - Patient Guide.pdf

SWODN Neuromuscular News
 

PDF iconSWNODN Neuromuscular News May18Iss6.pdf

PDF iconSWNODN Neuromuscular News May17Iss5.pdf

PDF iconSWNODN Neuromuscular News Aug16Iss4.pdf

PDF iconSWNODN Neuromuscular News Nov15Iss3.pdf

PDF iconSWNODN Neuromuscular News Mar15Iss2.pdf

PDF iconSWNODN Neuromuscular News Sept14Iss1.pdf

 

Clinical Guidelines & Resources

Excercise Advice for People with Muscle Wasting Conditions.  Muscular Dystrophy UK. November 2014

Spinal Muscular Atrophy Route Map - A resource developed by the support services team at Spinal Muscular Atrophy Support UK (SMA Support UK). It is based on the issues, concerns and personal experience of  parents and individuals with SMA, and the contributions of healthcare professionals with experience and expertise of this condition.

PDF icon SWNODN Non-Invasive Ventilation Leaflet V2 1.4.16 Web.pdf - A guidance leaflet on breathing and non-invasive ventilation (NIV) for children from the age of two years old living with a neuromuscular condition.  This leaflet has been designed to answer some questions you may have about how your breathing may be affected by a neuromuscular condition.

Publications

All Party Parliamentary Group for Muscular Dystrophy Impact of NHS reforms on access to neuromuscular services. March 2015