Outlook Patient Information

Regular Off Off

Who are we and how can we help?

We are a friendly service offering highly specialist psychological support to adults with appearance concerns relating to an unusual, changed or visible difference in appearance. This includes concerns that may be a result of:

  • Congenital conditions, for example birthmarks, hemangioma, hemifacial microsomia. 
  • Health conditions, for example dermatological, musculoskeletal or neurological conditions, including facial palsy.
  • Trauma after illness or accidents that have resulted in changes to someone’s appearance, for example scars, burns or stroke. 
  • Treatment, for example plastic or maxillofacial surgery, prosthetics, or stoma.

“These sessions weren’t just about emotional help but practical help and advice, which helped me enormously.”

“Having someone understand why I have the problems I do and who could see where I am coming from was so helpful.”

We provide psychological support for appearance-related concerns including:

  • Adjusting to a visible difference or changed appearance following illness, injury, or chronic/congenital condition. 
  • Support with decision-making and/or preparing for surgery, or other medical treatments.
  • Anxiety regarding treatment e.g. pre-surgical, having an anesthetic, or procedural anxiety.
  • Managing psychological trauma following an accident, injury, surgery, or other treatments.
  • Coming to terms with a diagnosis and/or coping with treatment.
  • Adjusting to loss and grief e.g. a change in your body.
  • Coping with emotional issues around your appearance e.g. anxiety, worries, feeling low.
  • Building confidence or self-esteem, e.g. returning to work, family, and social situations.
  • Difficulties in dealing with other people’s reactions.
  • Help getting back to previous activities or adjusting to new ones e.g. going home after being in hospital, getting back to work/study.
  • Signposting to other services that may be more appropriate for co-existing difficulties.

What happens when you get referred?

We only accept referrals from a healthcare professional (e.g. GP or hospital team). When you are referred to the service, we will send you a letter asking you to confirm that you would like to be seen. We will then put you on our waiting list and will contact you as soon as we can offer you an appointment. It is completely up to you whether you choose to come and see us.

“The sessions were flexible and adapted to my changing needs. We focussed on practical changes which I could implement in my day-to-day life”

“The sessions feel informal and the pace of it is within your control”

“The session gave me the tools to help myself to realise. ‘I can do this, nothing bad will happen if I try’”

What can you expect at your first appointment?

Before your initial appointment, you will be sent some questionnaires to complete online. This is to help us understand how things are for you now, and how they change during the course of any support we may provide.

If you feel unable to complete the questionnaires, or require any reasonable adjustments, please let us know by getting in touch. We can arrange to meet with you prior to your initial appointment to discuss any concerns and support you to complete them.

At the initial appointment, you will meet a member of the Clinical Psychology Team. We are experienced in helping people to feel more able and confident to cope with the emotional impact of health issues and appearance-related concerns.

During the first session, you will have the opportunity to explore your concerns. We will also explain in more detail how we might be able to support you with these. At the end of the first session, the psychologist will discuss a plan of care, which may include further sessions with Outlook or signposting to other services.

If you would like anyone to join your sessions, such as a family member or friend, you are welcome to invite them as long as they are over 16. Sometimes, we will ask your permission if another colleague can join the session. It is fine to say no.

“It has been great to feel like there is finally someone to listen and understand what I am going through. I was able to talk openly in a comfortable surrounding environment without judgement. Thank you so much - the sessions made a huge impact on life!”

“I felt relaxed enough to open up and say how I was really feeling, which meant the right help and advice was given.”

What will the sessions involve?

As well as having a safe and supportive space to discuss your difficulties, we will often explore:

  • Ways to handle difficult thoughts, feelings, or sensation (e.g. fatigue) so they have less impact on you.
  • Clarifying what matters to you (your personal values) and what change or progress might look like.
  • Work with you to facilitate change, enabling you to move towards your goals.

We may also agree on some activities for you to do between sessions. Learning new skills takes time and practice but these activities will help you to get the most from your sessions.

“The support has given me the confidence to have my photo taken, ask for something in a shop, go out for a meal…all baby steps to begin with but which have helped me put my life back together.”

“During the sessions we have been working on noticing, reflecting and having a more positive outlook. I feel through discussion this has really helped and having the week in between appointments to input ideas very useful.”

How many appointments will you have?

We usually provide short-term, focused psychological support. We will work with you to decide what goals you want to achieve. This will help us decide together if we are the right service to support you and if so, how many sessions would be useful. Follow-ups are usually 50 minutes long.

We are not able to offer long-term, regular sessions in this service.

However, if that seems a useful or appropriate option for you, we can try to help you find other services that offer longer-term counselling.

“It was great to feel more able to help myself…this meant that my progress has continued even once I’d stopped the sessions.”

What happens to the information we discuss?

We take confidentiality seriously. Most of what we talk about with you will remain private. However, it can be helpful for us to share important information with staff closely involved in your care, e.g. in summary letters after the first and last appointments. 

If there is anything you don’t want shared, please discuss this with the psychologist. However, if we are very concerned there is a risk of harm to you or others we may need to pass this information to relevant services, such as your GP. We keep a brief record of our session together in the medical notes and fuller notes are kept securely within the psychology team. If you have any particular concerns about confidentiality, please let us know.

Where are we based?

We run clinics in Gate 24, the Brunel Building, at Southmead Hospital, Bristol. On arrival, there is a main reception desk where you can find a map of the building, as well as staff and volunteers that can assist you to find your appointment venue. 

If you would prefer, we are able to offer appointments over video call. We can discuss this with you when arranging your initial appointment. 

If you want to give us feedback

We really value feedback from all clients who access the service and we will ask people at the end of their time with us to complete an anonymous feedback form. You can also provide direct feedback by writing to us or contacting the Advice and Complaints Team on 0117 414 4569.

“The sessions were flexible and adapted to my changing needs. We focused on practical changes which I could implement in my day to day life.”

“I appreciated the opportunity to talk things through and giving me hope.”

“I have achieved things I never thought I would manage again.”

“This experience has been hugely influential in my recovery and sense of wellbeing. My own journey is far from complete but I am so much better than I was.”

“Thanks to my sessions I now feel much more at ease with my feature, I don’t care what other people think of it!!”

© North Bristol NHS Trust.  This edition published May 2024. Review due May  2027. NBT003402.

Contact Outlook

Routine Sample Referral to Other Laboratories

Regular Off Off

Updated on 23/12/21

NBT Metabolic Biochemistry

https://www.nbt.nhs.uk/severn-pathology/pathology-services/clinical-biochemistry/biochemical-genetics

Clinical Biochemistry
Pathology Sciences Laboratory
Southmead Hospital
Westbury-on-Trym
Bristol
BS10 5NB

Urine organic acids, blood spot acylcarnitine profiles, blood spot galactosaemia screens and plasma amino acid analysis for follow-up of positive IMD screening results.

 

NBT Bristol Genetics Laboratory

https://www.nbt.nhs.uk/severn-pathology/pathology-services/bristol-genetics-laboratory-bgl

Bristol Genetics Laboratory
Pathology Sciences
Southmead Hospital
Bristol
BS10 5NB

CF mutation analysis

 

NBT Haematology

https://www.nbt.nhs.uk/severn-pathology/pathology-services/haematology

Haematology Department
Pathology Sciences
Southmead Hospital
Bristol
BS10 5NB

Confirmation of sickle and haemoglobinopathy results by iso-electric focussing.

 

Birmingham Children’s Hospital

Department of Clinical Chemistry
The Birmingham Children's Hospital NHS Trust
Steelhouse Lane
Birmingham
B4 6NH

Biopterin analysis as part of the differential diagnoses associated with elevated phenylalanine levels.

 

Red Cell Centre – Kings College Hospital

Molecular Pathology
c/o Central Specimen Reception
Blood Sciences Laboratory
Ground Floor Bessemer Wing
Kings College Hospital
Denmark Hill
London
SE5 9RS

Sickle cell disease testing by DNA, for babies that have had a blood transfusion before the blood spot sample was collected.

 

Virology – Royal Free Hospital

RRL – Specimen Reception (VIROLOGY Section)
1st Floor HSL Laboratories
Royal Free Hospital
Pond Street, Hampstead
London
NW3 2QG

CMV virology: See https://www.nbt.nhs.uk/severn-pathology/pathology-services/clinical-biochemistry/newborn-screening/blood-spot-retrieval for further information and downloadable consent form.

 

Newborn Screening Laboratory – Cardiff

Medical Biochemistry & Immunology
Heath Park
Cardiff
CF14 4XW

Bloodspot homocysteine analysis as part of the second-tier testing for Homocystinuria.

Contact Newborn Screening

Newborn Screening Laboratory (Bristol)
PO Box 407
Bristol
BS9 0EA

Email: newbornscreening@nbt.nhs.uk
Telephone: 0117 414 8412
 

Opening times: 9am - 5pm Monday - Friday excluding bank holidays.

Clinical advice & interpretation is available during working hours.

Access the NHS Blood Spot Screening Programme Centre

Routine Sample Referral to Other Laboratories

Stroke Research Useful Contacts

Regular Off Off

If you are seeking further guidance and/or support about Stroke, we recommend visiting the following health partners.

Across their pages, you will find a variety of resources and useful contacts to compliment the information you may already have received from North Bristol NHS Trust as part of your treatment or participation in one of our research studies.

Bristol Health Partners, Stroke Health Integration Team (HIT)

Bristol Health Partners, Stroke Health Integration Team (HIT) brings together clinicians, commissioners, academics, care and support providers and other experts, as well as people who have had strokes and their families and carers.

We are committed to preventing strokes and improving the lives of people affected by stroke through working together beyond the limits of individual organisations, in Bristol, North Somerset and South Gloucestershire (BNSSG).

If you would like be involved, even in a small way, please get in touch by emailing strokehit@bristolhealthpartners.org.uk 

The Stroke Association

The Stroke Association can provide free support to anyone who has been affected by a Stroke. This includes family, friends and carers. They can provide information, signposting and both practical and emotional support. If an adviser cannot help directly then they can usually find someone who can.

Stroke Helpline: 0303 3033 100 (lines are open Monday – Saturday)
Supporter Care: 0300 3300 740
Email: helpline@stroke.org.uk

Bristol after Stroke

Bristol after Stroke is a Bristol based charity, made up of professionals and volunteers who are able to provide information and support in the months and years following a Stroke. You can either refer yourself, or be referred by a carer, professional or agency that may be working with you.

The Bristol after Stroke team will ask a few questions about you and your stroke and what assistance you would like. They offer information and guidance, including referral on to other specialist help, advocacy to help you negotiate with other agencies, emotional and psychological support, counselling and peer support. They also offer rehabilitation support and care for the carers.

Address: The Gatehouse Centre, Hareclive Rd, Bristol BS13 9JN
Email: office@bristolafterstroke.org.uk
Telephone: 0117 964 7657

Other useful links

South Gloucester Council: A directory of useful services - search 'stroke' to access their directory.

Visit Home from Hospital service - (British Red Cross) website

Take Part in Research

Patient & Doctor viewing an x-ray

Become one of the thousands of people taking part in research every day within the NHS.

About Research & Development

NBT Researcher

Find out more about our research and how we're working to improve patient care.

Contact Research

Research & Development
North Bristol NHS Trust
Level 3, Learning & Research building
Southmead Hospital
Westbury-on-Trym
Bristol, BS10 5NB

Telephone: 0117 4149330
Email: research@nbt.nhs.uk

R&I Stroke.jpg

Urology Public Involvement Group

Regular Off Off

Do you suffer from urinary leaks, despite previous treatment?

We need women to be part of a new female Public Involvement Urology Group to help us to improve the care that we give to our patients. In particular, we are looking for women who experience recurring stress urinary incontinence (SUI). We are investigating the best way to treat this condition and we need your help to ensure we are putting patients at the centre of our research.

When is it?

The Project will take place over five year, and we are aiming to meet approximately twice a year over that time.

What will it involve?

  • Reading and feeding back on our new written patient information sheets, so that we can make sure they are easy to understand by the patients who are taking part in the research study.
  • Talking about the project in more detail with our research team.
  • Access to email would also be helpful.

Is there payment?

We will provide a £20 Love2Shop voucher as a thank you and to cover any out of pocket expenses.

Interested?

For further information, please contact:

Sharon Nolan sharon.nolan@nbt.nhs.uk (0117 414 933)
Communications and Patient & Public Involvement Manager

Take Part in Research

Patient & Doctor viewing an x-ray

Become one of the thousands of people taking part in research every day within the NHS.

About Research & Development

NBT Researcher

Find out more about our research and how we're working to improve patient care.

Contact Research

Research & Development
North Bristol NHS Trust
Level 3, Learning & Research building
Southmead Hospital
Westbury-on-Trym
Bristol, BS10 5NB

Telephone: 0117 4149330
Email: research@nbt.nhs.uk

R&I Urology.jpg

Whole Genome Sequencing Testing For Rare Disease

Regular Off Off

Is my patient eligible?

To review patient eligibility please Check the National Genomic Test Directory

All  current versions of the resources associated with the request process are curated on NHS England Genomic website under the Genomics Resources tab

For ease of navigation direct links are in blocks on below.

One page pathway guide for Rare Disease

R15 Primary Immunodeficiency Pre-Test Proforma

You can access the R15 Primary Immunodeficiency Pre-Test Proforma below:

Requesting reanalysis of existing data

For patients who have already had a WGS test under the National Genomic Test Directory (NGTD), reanalysis of a new gene panel or applying the latest version of the previous panel is only available where there is a change in clinical circumstances to justify the test.  This would include a significant change in the patient’s disorder, potential new treatment or clinical management applicable or a new pregnancy which might be impacted by testing.  There also needs to be a significant expectation that the re-analysis will provide a diagnosis which was not made by the original test.

For cases that satisfy those requirements, please complete the form below:

 and send to: SWGLHexports@nbt.nhs.uk 

Requesting a WGS test for Rare Disease

Sample image

NHS WGS test order form for rare disease:-

https://www.england.nhs.uk/publication/nhs-genomic-medicine-service-test-order-forms/

For sample information and transport options please see: Sample Requirements and Transport

Complete the two forms below and send to mailto: SWGLHexports@nbt.nhs.uk

NHS Genomic Medicine Service record of discussion form

 

Additional Forms

Document image

All published forms can be found directly on the NHS Genomic Medicine Service Resources website.

For expediency we have directly linked to additional forms that may be required for specific circumstances in the conversation process:

NHS Genomic Medicine Service young persons' assent form

NHS Genomic Medicine Service genomic consultee declaration (adult requests only)

Below is the form for opt in and out to the National Genomic Research Library as part of the conversation process:

NHS Genomic Medicine Service participation in research form

 

Clinical Guides for Rare Disease

Biochemistry Clinical Guidelines

One page pathway guide for the request process for Whole Genome Sequencing in Rare Disease can be accessed in the drop down at the top of this page.

The HEE resource for guidance on elements of the consent conversation can be found here:

HEE GEP Guide to requesting WGS test - RD

 

Genomics Education Programme Resources

There are many excellent education packages to support your genomic learning journey at Genomics Educational Resources

For more targeted Genomics Education resources to support Whole Genome Sequencing test pathway 

Whole Genome Sequence request need advice?

Contact us - fingers on a telephone number pad

If you require further information regarding genomic testing please contact the laboratory

Tel:0117 4146168 or SWGLHexports@nbt.nhs.uk

If you require support for navigating the pathway including completion of paperwork please contact the Genomic Healthcare Practitioners

email rduh.swgenomicpractitioner@nhs.net

 

Intensive Care Public Involvement Group

Regular Off Off

We're seeking fresh perspectives for our Head Injuries Public Involvement Group within the Intensive Care Unit.

We want to hear from people who have had a head injury in the past, and their families or carers to be part of an ongoing Patient Involvement Group, discussing aspects of upcoming clinical research studies in Intensive Care. The studies will look at possible new treatments for patients with head injuries in Intensive Care.

How you can help

  • Assist us in how best to communicate our studies to the families of the patients involved
  • Give feedback on patient study information that will be provided to a patient’s family about taking part in a research study
  • Join in on Public Involvement Group meetings on an ad hoc basis. At present these are being held virtually.

To ensure that you are not out-of-pocket, we will provide a £25 Love2Shop voucher for each meeting, helping to cover your out of pocket expenses such as parking costs.

Getting Involved

If you would like to participate in this Patient Involvement Group, please contact:

Kati Hayes: kati.hayes@nbt.nhs.uk | 0117 41 49330 
Research Nurse (Working Hours: Mon 
– Fri, 8:30am – 16:30pm)

or

Dr Matt Thomas: matt.thomas@nbt.nhs.uk
ICU Clinical Research Lead

or

Sharon Nolan: sharon.nolan@nbt.nhs.uk
Research Communications and Patient & Public Involvement Manager

Take Part in Research

Patient & Doctor viewing an x-ray

Become one of the thousands of people taking part in research every day within the NHS.

About Research & Development

NBT Researcher

Find out more about our research and how we're working to improve patient care.

Contact Research

Research & Development
North Bristol NHS Trust
Level 3, Learning & Research building
Southmead Hospital
Westbury-on-Trym
Bristol, BS10 5NB

Telephone: 0117 4149330
Email: research@nbt.nhs.uk

R&I ICU.jpg