Research Policies & Forms

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From writing your initial proposal to statistical requests and patient & public involvement, here you will find all the documents, forms and standard operating procedures you will need to develop and set up your research idea at North Bristol NHS Trust.

Our Standard Operating Procedures (SOPs) should be used by Chief and Principal Investigators, Research Nurses and all other research personnel. They provide detailed guidance on all aspects of research study management from design through to completion.

If you are an NBT staff member, the current research SOPs should first be accessed via our Managed Learning Environment (MLE) in accordance with the Research Staff Training SOP. This will provide you with an electronic training record to evidence that you have read each SOP.

It is the responsibility of all staff who carry out research to ensure you are using the latest SOP.

Some of the documents are available online below. If you would like a document that is not available online, please contact:  research@nbt.nhs.uk.

Policies & Guidance

R&I - (PO1) Commercial Research Policy

R&I - (PO2) Sponsorship & Central Trial Management Fees Policy

R&I – (P03) Excess Treatment Costs In Research at NBT has been suspended. All new research projects with excess treatment costs require approval from the General Manager/Clinical Director.

R&I - (PO4) NIHR Research Funding Recovery Policy

R&I - (PO5) - PPI in Research Payment Policy

R&D - (P06) Research Misconduct Policy

R&D P07 Safeguarding in Research Policy

NBT (CG-134) Adult Safeguarding Policy

NBT (CG-197) Safeguarding Children Policy

NBT (PEO-33) Fairness at Work Policy

Standard Operating Procedures

RD/QMS/SOP/001 : Preparation of Research Standard Operation Procedures
RD/QMS/SOP/002 : Obtaining R&D Confirmation for Research to Start
RD/QMS/SOP/003 : Research Study Amendments
RI/QMS/SOP/004 : Maintenance of Research Equipment SOP
RD/QMS/SOP/005 : Research Staff Training
RI/QMS/SOP/006 : Honorary Research Contract Letters of Access SOP
RI/QMS/SOP/006a External Researcher Information Form
RI/QMS/SOP/007 : Applying for NBT Sponsorship
RI/QMS/SOP/007b NBT Terms & Conditions of Sponsorship
RI/QMS/SOP/007c Delegation of Responsibilities
RI/QMS/SOP/008 : Writing a Protocol for CTIMPS
RD/QMS/SOP/009 Periodic Reporting to Regulatory Authorities
RI/QMS/SOP/010 : Archiving
RI/QMS/SOP/011: R&I Closing Suspending and Terminating Research
RI/QMS/SOP/012 : R&I Managing Breaches of GCP or the Protocol
RI/QMS/SOP/012a : ICH GCP NonCompliance Report Form
RI/QMS/SOP/012b Identifying & preventing noncompliance with Good Clinical Practice or the protocol
RI/QMS/SOP/012c : Protocol Deviation Review & Analysis Form
RI/QMS/SOP/013 : R&I Safety Reporting
RI/QMS/SOP/014 : R&I Monitoring
RI/QMS/SOP/015 : R&I Computer System Validation & Backup
RI/QMS/SOP/016 : R&I Research Contracts & Vendor Selection
RI/QMS/SOP/017 : R&I Data Management
RI/QMS/SOP/018: R&I Management of Fridges & Freezers
RI/QMS/SOP/020 : Management of healthy volunteers in research
RI/QMS/SOP/021 : R&I Informed Consent in Adult Research Setting

Templates

Research Ethics

At North Bristol NHS Trust, we are committed to ensuring that all research conducted within our organisation upholds the highest standards of ethical integrity, safeguarding the rights, dignity, safety and wellbeing of everyone involved.

We support high-quality, ethical research that contributes to improving patient care, public health, and service delivery.

Ethical Review Process

All research involving our patients, staff, data or facilities must receive appropriate ethical review and approval before it begins. This may include:

  • Review by a Health Research Authority (HRA) Research Ethics Committee (REC) – required for most research involving patients or identifiable NHS data.
  • Local review through the Trust’s Research & Development (R&D) Department, which ensures projects meet NHS and Trust-specific governance requirements.

We work closely with the HRA to ensure compliance with the UK Policy Framework for Health and Social Care Research and all relevant legal and ethical standards, including GDPR and the Declaration of Helsinki. 

The HRA provides comprehensive guidance on the ethical review process, including the roles and responsibilities of RECs to ensure that we protect the rights, safety, dignity and wellbeing of participants.

This centralised approach ensures consistency and rigour in the ethical review of health and social care across the UK.

You can find out more information here: 

 

Supporting Researchers

Our R&D team offers support and guidance throughout the ethical approval process. We help researchers:

  • Identify the appropriate level of ethical review
  • Prepare and submit applications via the Integrated Research Application System (IRAS), including development of the required submission documents such as research protocol, participant information sheets and consent forms.
  • Understand key ethical considerations such as consent, confidentiality, risk, and public involvement.

If you are planning a research project, please contact our R&D team early in your planning process to ensure ethical requirements are met, as part of our sponsorship review process.

Contact Us

For further information or support with research ethics, please contact:

Research and Development

Research Sponsor
North Bristol NHS Trust
Email: researchsponsor@nbt.nhs.uk
Phone: 0117 414 9330

View Our Research

Doctor conducting research at NBT

Explore the ground-breaking research currently taking place at North Bristol NHS Trust.

About Research & Development

NBT Researcher

Find out more about our research and how we're working to improve patient care.

Contact Research

Research & Development
North Bristol NHS Trust
Level 3, Learning & Research building
Southmead Hospital
Westbury-on-Trym
Bristol, BS10 5NB

Telephone: 0117 4149330
Email: research@nbt.nhs.uk

Endoscopic Sleeve Gastroscopy (ESG)

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Welcome to the North Bristol Weight Management Service

This information is to help you prepare for your procedure. Take time to read it carefully, and we can answer any questions you have.

Important information:

  • We are here to help you on your weight loss journey and think surgery will help your health and wellbeing.
  • It is a big step, and we can help you make long-term habits to maintain your progress. We can support you for 2 years after surgery.
  • We cannot offer this procedure to anyone who smokes or vapes – nicotine causes complications.
  • We welcome your feedback and suggestions to improve our service.

Endoscopic Sleeve Gastroplasty (ESG)

  • ESG is an endoscopy procedure to reduce the size of the stomach.
  • We place stitches (sutures) on the inside of the stomach and pulling them tight to fold the stomach in on itself.
  • This means your stomach holds less food, and you will feel full more quickly after eating.
  • You will lose about 10-15% of your body weight usually in the first year.
  • Your change in appetite means you can start new eating habits along with help getting the right nutrition.
  • Endoscopic means we put a flexible tube down your throat to do the procedure. We won’t do any external incisions (cuts) so there are less complications than other types of weight loss surgery.

Complications

The risk of serious complications like these is small:

  • Bleeding.
  • Infection.
  • Tears in the stomach.
  • Abscess (a pocket of infection).
  • Leaking of stomach contents into the chest or abdominal cavity.
  • Pulmonary Embolism (a blood clot in the lung).
  • Pneumothorax (collapsed lung).

Diet before ESG

Many people who live with obesity have an enlarged liver. This can make the procedure more difficult and increase the risk of complications.

It is important you follow a low calorie and carbohydrate diet for 2 weeks before your operation. The diet helps shrink the size of the liver making the procedure easier and safer. It is sometimes called the Liver Reducing Diet.

This diet will encourage your body to use up its stores of glycogen (a form of stored sugar in the liver and muscles). This causes the liver to shrink rapidly.

This diet designed to reduce your risks from the surgery and should not be followed long term.

What does the diet involve?

  • Each day aim to stick to between 800-1000 calories. This should include at least 60-80g protein.
  • The diet is low calorie, low fat, low sugar, and low carbohydrate.
  • You can choose to use food, shakes or a combination of both.
  • We suggest you include at least 1 meal per day of normal food. This is so you can practice chewing your food thoroughly. You should chew each bite at least 20 times until it is soft/like a paste before swallowing.. This is an important part of eating after your surgery to make sure you get the best outcome.

Option 1: food

Protein: try to include a protein food at every meal. Aim for 60-80g protein each day. Focus on low-fat protein sources such as chicken, fish, turkey, beans, lentils, tofu, or low-fat dairy.

Fats: limit the amount of oil, butter or margarine you use. Cooking sprays are a good alternative. Try to avoid high-fat foods such as cakes, biscuits, or crisps.

Carbohydrate: Limit carbohydrates with lots of starch. Try to have 1-2 meals per day which do not include starchy carbohydrates. Choose wholegrain options if you do eat them. Aim for less than 120g per day.

Sugars: Avoid adding any type of sugar, honey, or syrup to foods. Artificial sweeteners are ok to use. Aim to avoid eating any foods high in sugar e.g. cake, chocolate, sweets, fruit juice.

You will need to start taking a multivitamin and mineral supplementation as this diet is won’t give you all the nutrients you need. This can be either tablet or chewable/gummy. There is more information about vitamins later in this booklet.

Meal ideas

BreakfastLunchDinnerSnacks
High protein yoghurtSoup with meat/beans/ lentilsChicken breast (no skin) with vegetables and 1-2 new potatoes

Boiled egg

Egg muffin

Babybel light  

High-protein yoghurt

Veg sticks

Fruit (1 portion) like 1 apple, 1 small banana, 2 satsuma/kiwi/ plum, 80g of chopped fruit  

Poached/ boiled eggs on 1 slice seeded bread1-2 oatcakes with cottage cheese and saladHomemade turkey burger with salad and low-fat coleslaw
150-200g Low-fat natural yoghurt with berriesTuna/chicken/tofu salad with low-fat salad dressingWhite fish or tuna steak with ratatouille
Scrambled eggs/tofu with mushrooms and tomatoes1 slice seeded bread with tuna/ chicken/tofu and sweetcorn mixed with low-fat mayoTurkey mince chilli with veg and 1-2 tablespoons of cooked brown rice
Protein shakeHummus or bean dip with vegetable sticksShakshuka - baked eggs in a tomato stew

Nutrient tracking options

Where to find recipes

Option 2: meal replacement shakes

You can have low-sugar, high-protein, meal-replacement shakes to provide 800-1000 calories in total each day. Many of these shakes are low in fibre so it can be helpful to include 1-2 portions of vegetable or salad each day (fibre in these helps prevent constipation).

Look for shakes with 200-300 kcals and 20-30g protein per serving. Aim for a low sugar option - about 5g of sugar per 100g/100ml.

Some suitable options

ProductPreparationNutrition per servingServings per day
High-protein milk2 tbsps of skimmed milk powder to 300ml milk

Skimmed milk:

215kcals and 21g protein

Semi-skimmed: 250kcals and 21g protein

3-4
Huel*

40g Huel black edition powder mixed with 500ml water

Huel black edition pre-made (500ml)

400kcals and 40g protein

400kcals and 35g protein

2-2.5
Grenade Carb Killa

Pre-made shakes (330ml)

Bar (60g)

210kcals and 25g protein

240kcals and 20g protein

3-4
My Protein

60g Impact diet whey powder mixed with 300ml water

Pre-made Impact shake (330ml)

220kcals and 35g protein

200kcals and 25g protein

3-4
PhD Smart protein Plant*25g powder in 250ml water

240kcals and 20g protein

220kcals and 21g protein

3-4

* vegan options

Option 3: combination of food and shakes

MealFood/shakeCalories (Kcal) per portion
BreakfastMeal replacement shake200-250 Kcals
LunchMeal replacement shake200-250 Kcals
Evening mealLunch/dinner option from meal ideas table above300-400 Kcals
SnacksVegetable sticks/sugar free jelly5-100 Kcals

Diabetes

If you have diabetes treated with tablet medication and/or insulin you will probably need to change these medications. Your diet before and after surgery will have very little carbohydrate and can increase your risk of hypoglycaemia.

We will help you make a plan in your pre-operative assessment appointment. You will need to monitor your diabetes control more closely during this time.

Reintroducing food after ESG

What is the aim of the diet after ESG (post-procedure diet)?

After your procedure you will reintroduce food over 6 weeks. You will slowly move from liquids to solid food. This is to reduce pressure in the gastric pouch, give the stitches time to heal, and optimise your weight loss.

Aim to:

  • Take small mouthfuls of food and drink.
  • Stop eating before you feel full - 1-2 mouthfuls of food extra may make you feel discomfort, nausea or make you vomit.
  • Learn what the early signs of fullness feel like to you and stop here.
  • Chew your food thoroughly – about 20 times per mouthful.
  • Sip fluids slowly.

If you do not follow these recommendations, there is a risk of loosening the stitches, becoming unwell, or not achieving significant weight loss.

The post-procedure diet involves 4 stages:

  1. Thin liquids: 2 days days 1-2)
  2. Liquid diet: 12 days (week 1-2)
  3. Puree diet: 2 weeks (week 3-4)
  4. Soft diet: 2 weeks (week 5-6)
  5. Normal texture food: week 7 onwards

Stage 1: thin liquids (2 days)

Following surgery, you will need to drink thin liquids (drinks) only for 2 days such water, squash, protein water, tea and coffee, and semi-skimmed milk.

  • Have small amounts of fluid (no more than 50mls) every 10-15 minutes.
  • Aim for least 2 litres of fluids each day.
  • Even if you feel thirsty it is important you drink small quantities at a time
  • Avoid fizzy or high sugar drinks such as juices.
  • If you have stomach pain or nausea whilst drinking stop until the feeling has passed.

Stage 2: liquid diet (12 days)

Aim to have high protein drinks, shakes, or soups which are smooth (with no lumps) regularly through the day. The liquids should be able to run off the back of a spoon like thin yoghurts, tinned soups, or runny custard.

  • Portion sizes are approximately 100-300ml.
  • Take small mouthfuls one at a time and give yourself a break in between mouthfuls so you can recognise the early signs of fullness and stop.
  • If you feel pain, stop immediately.
  • You will need to drink other fluids (water, tea, squash) to get your 2 litres fluids per day.
  • It can be difficult to get enough nutrients while you are following a liquid diet.
  • Aim to include as many liquids with lots of protein as possible. Protein is important for your general health including maintaining your muscle mass while you are losing weight. This will help your overall weight loss.
  • Aim for 60g protein.

High protein liquids

  • ‘Fortified milk’ - 1 pint semi-skimmed or skimmed milk with 4 tbsps of dried skimmed milk powder.
  • Smoothies – fruit or vegetables blended with fortified milk, natural yoghurt or protein powder. (Avoid shop bought smoothies as these are low in protein and high in sugar).
  • Smooth Soup (homemade or tinned). Add 1-2 tbsp of skimmed milk powder, protein powder or quark.
  • Meritene or Complan shakes or soups – available in Supermarkets or pharmacies.
  • Meal replacement shakes e.g. Slimfast, Tesco Slim, Asda Great Shape, Exante or Lighter Life.
  • High protein milkshakes e.g. UFit, Arla, For Goodness Shakes, Urban Active
  • Protein Water e.g. Vieve, Upbeat or +PW
  • Whey, soya, or pea protein powders

Recipes

OptionIngredientsMethod
High protein milk

4 tbsp (60g) skimmed milk powder

1 pint (570ml) skimmed or semi-skimmed milk

Optional vanilla extract/ unsweetened cocoa powder/coffee

Mix milk powder with a little milk to form a paste.

Stir in the rest of the milk.

Fruit smoothie

Half a pint (250ml) high protein milk

One quarter of a pint (100ml) low fat yoghurt

3 oz (100g) fresh fruit like banana, strawberries (fresh or frozen)

Combine all ingredients in a blender and blend until smooth.

Serve chilled

 

Stage 3: puree diet (2 weeks)

After 10 days of a liquid diet, you can progress to foods with a thicker, puree consistency. You will need to use a food blender, processor or liquidiser.

Start with 1 tsp of food at a time and check how you feel after. Each meal should have around 2- 4 tbsp. Aim to eat the protein part of the food first. It may be helpful at this stage to cook and freeze foods, as portions will be small.

See the example menu plan on the next page.

Tips:

  • Eat protein food first, then vegetables and finally carbohydrates. P.V.C (Protein, Vegetable, Carbohydrate). In the early days, you may only manage the protein.
  • Use high-protein milk in/with foods such as cereal, scrambled eggs etc.
  • Try one new food at a time. If you feel sick, gas, or bloated, it may be the case you are not ready for this type of food, try again in a few days.
  • Food can be liquidised in bulk and frozen. You can use an ice cube tray and take a few ice cubes out per meal.
  • Slow cook or casserole meat in plenty of liquid to make it easier to blend.
  • Adjust your portion sizes as you feel necessary. Listen to your body and stop before you feel full.

Sample meal plan

MealOptions
Breakfast
  • Half or 1 whole Weetabix with high protein milk or
  • 1 pot yoghurt of fromage frais or
  • 2 tbsp of porridge or Ready Brek made with high protein milk
Mid morning
  • 200 ml high protein drink
Lunch
  • 1 cupful of soup made with fish/meat/beans/ pulses and potato or
  • 1 scrambled egg or
  • 1-2 tbsp pureed fish/pulses/ chicken/meat or
  • 1-2 tbsp mashed cottage cheese or

with 1/2 tbsp pureed vegetables

and 1/2 tbsp mashed potato/sweet potato/winter squash

Mid afternoon
  • 150ml yoghurt with or without pureed fruit or
  • 150ml fruit smoothie or
  • 200ml skimmed or semi-skimmed milk or
  • 2 tablespoons low fat custard or
Evening meal

1-2 tbsp pureed fish/pulses/chicken/meat,

with ½ -1 tbsp blended vegetables,

  • and ½ -1 tbsp mashed potato/sweet potato/winter squash
Evening snack200ml high protein drink

Stage 4: soft diet (2 weeks)

You no longer need to blend food. Gradually introduce foods which are soft in consistency, that is they fall apart easily with a fork. Foods which are naturally moist are good at this stage or add sauce/gravy to dishes.

You can also include crunchy foods in this stage such as cereal, crackers or toast. Make sure you chew these foods thoroughly. Start with a small portion e.g. 3 tablespoons as a meal and increase gradually depending on how you feel.

Tips:

  • Aim to grill or air fry and use herbs/spices to flavour foods.
  • If using oil, measure out a small amount (1-2 tsp).
  • Try 1 tbsp (tablespoon) of a new food every 1-2 days. If you feel nauseated or bloated after eating, then you may not be ready for this food. Wait a few days before trying this food again.

Sample meal plan

MealOptions
Breakfast
  • 1 Weetabix/25g porridge oats/All Bran/Branflakes with skimmed or semi-skimmed milk or
  • Scrambled egg with 2 wholegrain crispbreads/ crackers with 1 tsp butter/margarine/low fat cheese spread
Mid morning
  • 150ml light natural yoghurt/fruit yoghurt or
  • 200ml semi-skimmed milk or
  • 200 ml high protein drink
Lunch
  • 200ml high protein soup for example chicken/lentil/ bean/fish or
  • Small jacket potato without skin with 40g cottage or low fat cheese or
  • Macaroni cheese/cauliflower cheese
Evening meal
  • 50g fish/chicken/turkey/ground beef
  • with half a cup soft cooked vegetables
  • and half a cup mashed potato/sweet potato/winter squash/risotto/4-6 wholegrain crackers/1 slice wholegrain toast
Evening snack
  • 150ml low fat natural or low sugar fruit yoghurt or
  • 1/2 cup pureed/stewed/soft/tinned fruit or
  • 1 scoop sorbet or
  • 200 ml high protein drink

 

Stage 5: healthy normal textured diet (week 7 onwards)

You are now ready to progress onto your long-term healthy diet.

This can be challenging as you learn how much you can eat of certain foods and the importance of paying attention to your body as you eat. Continue to add new foods in slowly. Aim to eat 3 small meals per day with 1-2 snacks as necessary. Focus each meal and snack on protein-rich foods. Keep portions small by using a side plate. Aim to eat 60-80g protein per day.

Cooking tips:

  • Remove fat and skin from meat before cooking.
  • Use low fat cooking methods such as grilling, baking (wrap in foil to keep things moist), steaming or boiling.
  • Limit oil or butter added to vegetables or salads. If you need extra flavour, add seasoning, low-calorie dressing or vinegar.
  • If you need to use oil to stop food from sticking, use a spray oil.
  • Add flavour using herbs, spices, seasonings, lemon juice, ginger, onions, and garlic.
  • Aim to avoid adding oil or butter to carbohydrates.
  • Choose high fibre (wholegrain) carbohydrate foods where possible like wholegrain bread, brown pasta, brown rice, wholegrain / seeded crackers or oatcakes and keep skins on potato.

Sample meal plan

MealOptions
Breakfast
  • Wholegrain cereal/porridge/Ready Brek made with milk or
  • Wholegrain toast/crackers/crispbread with 1 tbsp of low fat cheese spread/peanut butter/hoummous or
  • Scrambled egg on toast or
  • Baked beans on toast
Mid morning
  • Fruit, tea/coffee or
  • Cracker with low fat spreadable cheese/peanut butter
Lunch
  • 200ml high protein soup like chicken/lentil/bean or
  • Baked beans / sardines / poached egg on toast or
  • Bean and rice salad or
  • Small jacket potato with baked beans/tuna/cottage cheese
Dessert
  • 150ml light natural or fruit yoghurt or
  • Half a cup soft/pureed/stewed fruit or
  • 1 scoop sorbet
Mid afternoon
  • Tea/coffee/vegetable juice
  • Fruit/low fat yoghurt
Evening meal

Small serving of lean meat/fish/egg/beans/lentils/tofu/ quorn

with a serving of vegetables or salad

  • and small serving of potatoes/brown rice/brown pasta/ chapatti/yam/plantain/cassava
Dessert
  • Fruit/low fat yoghurt/low fat puddings

Snack ideas - 100 calories with high protein

  • Small handful nuts
  • Slice of smoked salmon or ham with cucumber sticks
  • Trail mix of nuts/seeds with dark choc chips
  • 1 pot of high protein natural yoghurt (Icelandic or low fat Greek style)
  • 1 pot Greek style Soya yoghurt
  • 1 boiled or Devilled egg
  • 1 oatcake or rye crispbread with 1 tbsp cottage cheese or low fat cream cheese
  • 1 egg muffin
  • Veg sticks with 1 tbsp of hummus or bean dip
  • 2 tbsp roasted pumpkin/ sunflower seeds
  • Slice smoked salmon with 1 teaspoon cream cheese
  • Nice cream – frozen banana whizzed with peanut butter
  • 1 pot of fruit flavoured high protein yoghurt
  • 2 tbsp low fat Greek yoghurt with handful of berries
  • 80g soya/edamame beans
  • 80g Spicy chickpeas – try roasting with cumin and smoked paprika
  • Slice of ham with low fat cheese spread* or cottage cheese
  • 1 mini cheese or Babybel
  • 1 stalk of celery or 2-3 slices of apple with 2 tsp of almond butter
  • 1 pack of chicken bites

Complications after the procedure

Constipation

It is common to have constipation in the early days after these operations because you are not having much food and drink

To help manage constipation:

  • Drink plenty of fluids – aim for 2 litres a day a day.
  • Add in a laxative such as sodium docusate or senna.
  • Add in some high fibre foods where able e.g. vegetables, wholegrain carbohydrates, beans and pulses.
  • Keep as active as you can.

Please contact the Bariatric Team or the Bariatric Clinical Nurse Specialist if the above does not work.

Nausea, vomiting, and indigestion

If you have any of these, it may be because you are:

  • Eating too quickly.
  • Not chewing enough.
  • Eating too much.
  • Drinking with the meal or within half an hour after eating.
  • Lying down too soon after eating.

If you suddenly feel unwell with symptoms such as shortness of breath, worsening abdominal pain, fever, limb swelling, unable to tolerate food/fluids, nausea and vomiting please go to the Emergency Department, contact Bariatric Team or GP.

Feeling tired

It is common for people to feel tired and to have low energy levels in the early weeks after the procedure. This is usually because it is difficult to get enough calories and protein, also the fact you are losing weight.

Aim to consume at least 60g protein and 800 calories each day. If you are struggling to do this, it can be helpful to include protein shakes to help meet this target.

Tiredness can also, but less commonly, be due to a vitamin or mineral deficiency, so please do ensure you take your multivitamin and mineral supplement once a day.

Hair loss

In the first 6-9 months, it is common to have some hair loss. This also is usually due to not enough calories and protein. Once your weight loss has stopped, this problem usually goes away.

Vitamin and mineral deficiencies

After your procedure you will be eating much smaller portions of food and it can be hard to get all the vitamins and minerals your body needs. Please take the following vitamins and minerals. You can buy these in most supermarkets, chemists, or online.

  • 1 A-Z multivitamin tablet once a day.
  • 1 vitamin D tablet once a day.

For first 6 weeks these need to be in a chewable form. Once you are on a normal textured diet you can take a tablet form.

Suitable options are:

  • Chewable: Superdrug chewable, Centrum chewable
  • Tablet: Tesco A-Z, Superdrug A-Z or Aldi A-Z

Dumping syndrome

Dumping syndrome is a less common side effect after ESG. It happens when the lower end of the small intestine (the jejunum) fills too quickly with undigested food from the stomach. There are two types of dumping:

  • Early dumping - happens during or right after a meal. Symptoms of early dumping include nausea, vomiting, bloating, cramping, diarrhoea, dizziness and fatigue
  • Late dumping - happens 1-3 hours after eating and is usually due to a low blood sugar. Symptoms of late dumping include weakness, sweating and dizziness .

Managing dumping syndrome

  • Early dumping syndrome: lie down as soon as you have symptoms, you are likely to feel better after around 30 minutes.
  • Late dumping syndrome: have a snack that includes both carbohydrate and protein like a cracker with soft cheese. If you feel very unwell you may need a small glass of orange juice before the cracker to bring your blood sugar back to normal.

To avoid dumping symptoms:

  • Avoid chocolate, biscuits, cakes, sweets, desserts, high sugar drinks, high glycaemic index (GI) carbohydrates such as white bread.
  • Aim to eat at least 3 times per day (rather than 1 big meal).
  • Avoid eating and drinking at the same time – wait 20 minutes.

Increased fertility

Losing weight can increase fertility and we strongly recommend that you do not become pregnant for at least 18 months following the procedure. Weight loss can have negative effects on the pregnancy.

After this surgery your oral contraceptives (the pill) may not work. You should use alternative methods of contraception, for example, barrier methods (condoms/cups) if this is a concern.

If you become pregnant following the procedure it is important to let your GP, Obstetrician, Midwife, and Bariatric Team know as soon as possible. You may need extra monitoring during the pregnancy to make sure that you and the baby get enough nutrients to keep healthy.

Long term tips for the best outcome

  1. Focus on protein-rich foods every time you eat. Include vegetables, salads, wholegrain carbohydrates, unsalted nuts and fruit.
  2. Eat three meals a a day and choose healthy snacks if you are hungry in between meals.
  3. Think PVC – protein first, then vegetables, then carbohydrates.
  4. Limit foods high in fat, saturated fat and sugar such as biscuits, cakes, muffins, sweets, confectionary, chocolate and crisps
  5. Aim to follow the ‘Rule of 20’:
  6. Cut your food up to the size of a 20 pence piece size
  7. Chew 20 times
  8. Wait for 20 seconds after swallowing before taking a second mouthful.
  9. Stop eating after 20 minutes (if you haven’t already stopped).
  10. Avoid drinking 20 minutes before and after eating
  11. Sip fluids often throughout the day; aiming for 2 litres a day
  12. Avoid carbonated and sugary drinks.
  13. Avoid alcohol for the first 6 months and drink within recommended a day limits thereafter.
  14. Monitor your weight and food intake if you find this helps you keep on track.
  15. Move your body in ways that your body allows, and you enjoy such as exercise classes, walking or dancing in the kitchen.
  16. Take your vitamin and mineral supplements.

You will have Specialist Dietician support for 2 years following the procedure. Your first review will be approximately 4 weeks after your operation.

How to contact us

  • Bariatric Coordinators: 0117 414 0855/54
  • Bariatric Waiting List Coordinator: 0117 414 8826
  • Bariatric Surgery Senior Enhanced Practitioner: 0117 414 2085 or 0755 7312784

© North Bristol NHS Trust. This edition published April 2026. Review due April 2029. NBT003687

Urine Flow Clinic (at Weston General Hospital)

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Flow tests

On the day of your appointment, drink approximately 2 pints of fluid before you come to the clinic, in order to have a successful test. If you cannot manage this, arrive around 20 minutes early for your appointment, and water/ squash will be provided for you to drink.

If you normally take diuretics (water tablets), please take them as normal on the day of the clinic. If this is likely to cause you problems, bring them with you. You can take them when you arrive at the clinic.

The clinic nurse will then ask you to do some urine flow tests. The flow test involves passing urine (peeing) into a special toilet that measures the flow. You will be left in private to do this.

After you have passed urine into the flow toilet, the clinic nurse will do a bladder scan to find out whether you have completely emptied your bladder. This is painless, and involves passing an ultrasound probe over your tummy to get a reading.

Due to the nature of the appointment, if you would like a chaperone present please tell the clinic nurse.

Some patients will need a further test, so will need to stay longer in the department.

Other appointments

You may have an appointment booked to see a Urology doctor on the same day as your appointment for your flow test. This will be in Quantock Outpatients department, on the ground floor.

If you do have an outpatient appointment on the same day, Quantock Outpatients will be aware of this. They know that flow tests can sometimes take a while to complete, so will not worry if you are late for the doctor’s appointment.

Transport

You will be able to drive both before and after the appointment. If you cannot use your own or public transport, please ask a relative or a friend to bring you. Your GP can only order hospital transport for medical reasons.

How to find us

Follow the signs from the main entrance of the hospital to the first floor of the Jackson-Barstow Wing. There are signs to the Urology Department within the wing.

General information

Parking and public transport

Parking for Blue Badge holders is free; other spaces are pay-on-exit. Please ensure you have a valid payment card or plenty of change with you.

A regular bus service runs to Weston General Hospital.

Infection control

Help us prevent the spread of infection while in the hospital. Please make sure your hands are clean. Wash and dry them thoroughly, and/or use the hand gel provided.

If you have been unwell in the last 48 hours, please consider whether your visit is essential.

Other means of communication

If you need this leaflet in another format, please contact the Patient Advice and Liaison Service (PALS) on 0117 414 4569.

© North Bristol NHS Trust. This edition published March 2026. Review due March 2029. NBT003859

Hernia prevention and core exercise

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Information for patients after abdominal and stoma surgery 

Around 7 in 10 people who have stoma surgery will get a parastomal hernia. This is when there is a bulge near the stoma. This can develop gradually, increasing in size over time. The hernia happens because the tummy muscles are made weaker during surgery when the bowel is brought through the muscle to make a stoma.

Parastomal hernias can make managing the stoma tricky. They can cause:

  • The stoma to not work as well.
  • Pain around the stoma.
  • Discomfort when moving about.
  • Difficulty fitting the stoma pouch because of the shape of the stoma - this may mean the pouch is not secure.

What to do before surgery to prevent hernias

  • Do gentle abdominal exercises like the ‘Core 4.’ Even if you do not already do regular exercise these will soon feel comfortable.
  • Maintain a healthy weight and reduce tummy fat - this will put less pressure on the abdominal muscles.

How to help prevent hernias after surgery

  • Avoid driving for at least 4 weeks after laparoscopic (keyhole) surgery. After open surgery avoid driving for at least 6 weeks, if your wounds have healed. You should also check with your insurance company.
  • Avoid strenuous (very physical) activity for 8 weeks. This includes heavy lifting, pulling, pushing, or awkward movements like stretching and twisting.
  • Support your stoma when you sneeze or cough.
  • Use the bed roll method to get out of bed.

From 8 weeks after surgery

  • You can start doing more strenuous activity while using a support belt:
    • You will discuss this and be measured for it during your post-surgery clinic review.
    • You should still avoid very heavy lifting and awkward movements.
    • When moving smaller items follow correct manual handling advice.
  • Continue your abdominal exercises to build your strength:
    • We advise you not to wear the support belt when doing this so you can feel your core muscles engage.

Health factors that contribute to hernias developing

  • Smoking (4x greater risk of developing a parastomal hernia).
  • Persistent coughing due to COPD or asthma.
  • Being overweight or having a large abdominal girth (measurement around your waist), particularly greater than 100cm.
  • Being generally unfit.
  • Lifting heavy items with poor manual handling technique.

Breathing to reduce intra-abdominal pressure

Intra-abdominal pressure (IAP) is the pressure inside the abdomen (tummy). Reducing IAP can help reduce the risk of hernia developing. Using safe ways to lift and move things (manual handling), and learning how to breathe well can help lower IAP. 

Deep breathing can help your core muscles to work more efficiently by engaging the core.

  • Take a slow deep breath in through your nose.
  • Expanding your abdomen and ribcage out.
  • Exhale slowly out through your mouth, feeling your ribs move back inwards.
  • Repeat 5-6 times.

Do not hold your breath when doing an exercise or lifting task. When exerting effort, breathe out to lower your IAP.

If the abdomen domes/pushes out during exercise (or lifting) and you can feel a raise in pressure, this is a sign of increased IAP. Stop doing any movement or exercise that causes this. Move into a better position and adjust your breathing to reduce the increase in IAP.

  • Try to avoid anything that may raise IAP including:
  • Preventing nausea and vomiting.
  • Managing long term coughing and by seeking support from your GP or respiratory team.
  • Urostomy and colostomy patients should maintain good diet and hydration to prevent constipation.
  • Support your abdomen/stoma with a rolled-up towel/pillow/hand when coughing, sneezing, or blowing your nose.

The benefits of protein

  • Proteins are made up of amino acids. These give your body energy and help cells renew; this helps build and heal muscles. Increasing how much protein you have before surgery will help to build supplies and condition your body. Keeping this up after surgery will help with healing and strength.

High protein foods include:

  • Fortified yogurt and drinks.
  • Protein powders you can add to soups and smoothies.
  • Foods like fish, turkey, and chicken.
  • Dairy.
  • These all help repair and regain muscle tissue.

Log roll technique to get in and out of bed

  • To avoid putting strain on your abdomen in the first stages of recovery (up to 2-3 months post-surgery), use the log roll technique to get in and out of bed. Please ask your stoma nurse or physiotherapist about this.

This is important immediately after surgery

Getting out of bed

  • Raise one knee at a time and roll onto your side, moving your entire body in one movement.
  • Lower your legs over the side of the bed.
  • Use your arm furthest away from the bed to push yourself up into a sitting position.

Getting into bed

  • Sit on the side of the bed with the back of your knees against the bed.
  • Lower your body to the bed surface with use of your arm, furthest away from the side of the bed you are going to lay on.
  • Slowly lift both legs onto the bed to meet your body, keeping your knees bent.
  • Roll onto your back and slowly lower one leg at a time.

Exercises

From 3-4 days post-surgery up to 8 weeks

Tummy tightening breathing deep core-back

  • Lie on your back, on the bed, or floor with your knees bent.
  • Take a deep breath in.
  • As you exhale, draw your abdominal muscles down towards your spine and ribs towards your pelvis.
  • Hold this contraction for 2-3 seconds while still breathing. Then release and repeat 5 times.
  • Slowly build up to holding the contraction for 10-15 seconds and repeat 5-10 times.
Line drawing of person lying on floor with arrows indicating breathing in and out

Deep core side

  • Lie on your side with knees bent.
  • Allow your stomach to drop toward the floor.
  • Take a deep breath in and exhale, drawing your abdominal muscles in and towards your back, pulling your ribs toward your pelvis, and lifting your tummy away from the floor.
  • Hold the contraction for 2-3 seconds then release and repeat 5 times.
  • Slowly build up to holding the contraction for 10-15 seconds and repeat 5-10 times.

Pelvic tilt

  • Lie on your back, on the bed/floor with your knees bent.
  • Press your lower back into the bed or floor.
  • Rock your pelvis up towards your head, feeling a tightening in your tummy and bottom muscles, slightly pulling your ribs and pelvis together.
  • Hold the contraction for a second and return to the neutral position. Repeat 5 times - build to 20 repetitions.
Line drawing of person lying on back with knees bent and arms folded, arrows indicating tilting pelvis

 

From 7 days post-surgery

Knee rolls

  • Lie on your back on the bed or floor with your knees bent.
  • Keep your knees and thighs together, exhale. Slowly drop your knees as far as is comfortable, rotating your pelvis and hips to one side.
  • Keep your shoulders fixed to the floor as you roll. Inhale and breathe normally, and hold the position for a few seconds. Drop your knees a little to start with, and work on increasing this over time.
  • Exhale and return your knees up to the starting position, use your core muscles to draw them up slowly. Repeat on alternate side 10-15 times.
Person lying on back with arms outstretched, legs together with knees bent and turned to the right

Seated knee lifts

  • Sit toward the edge of a chair with your back straight and unsupported (not leaning back).
  • Engage your deep core, pulling your tummy toward your spine and breathe normally. Lift one foot from the floor a short distance, hold for 2 seconds
  • then return foot flat to the floor.
  • Repeat 10-20 times on alternate sides. You can increase the height you raise your foot from the floor over time.
Person sitting on chair with arms on foot on the floor and one leg lifted with knee bent

Hip bridge

  • Exhale and pull your tummy toward your spine, tilt your pelvis toward your head and lift your tailbone off the floor. Raise up a short way pushing from your heels, curling up through your spine.
  • Breathe in and normally, holding the position for 2 seconds.
  • Exhale and slowly lower yourself curling your spine back to the floor, relax and repeat 10-15 times.

 

Person lying on back with knees and hips lifted up

From 6-16 weeks

Leg slides

  • Lie on your back on the bed/floor with knees bent up and core pulled toward your spine.
  • Exhale and slide one foot slowly away from you straightening your leg and breathe in. Exhale and slowly draw your foot back to the starting position. Keep control of the core by pulling it towards your spine. Repeat on alternate sides 10-20 times.
  • As you get stronger you could increase the intensity by raising the opposite arm to leg up, and rotating it back past your head to your ear. Move the arm and opposite leg at the same time.
Person lying flat on floor with one hand under head, one knee bent with heel touching floor

Knee circles

  • Lie on the bed/floor or sit in a chair with your back straight and unsupported, exhale, pull your core towards your spine to engage your deep core, breathe normally.
  • Exhale and lift one knee to 90 degrees (right angle), breathe normally keeping the core engaged.
  • Circle the leg making a clear movement to one side, towards the chest, towards the opposite knee and to the back completing a full circle.
  • Lower the foot back to the floor and repeat on the opposite side, alternating 10-20 times.
Person lying flat on back, one leg bent at knee with foot on floor, one leg raised

Hip bridge and inner thigh squeeze

  • Lie on the bed/floor with your knees bent up and place a small ball or rolled up towel between your knees and hold firmly.
  • Exhale and pull your tummy towards your spine, tilt your pelvis towards your head and lift your tailbone off the floor. Raise your body up, curling your spine off the surface, pushing from your heels until your body runs straight from your head to your knees.
  • Breathe in and normally, holding the position for 2-5 seconds. Exhale and lower your body back to the floor curling your spine flat. Repeat 15-20 times.

Half superman with arms

  • Start on your hands and knees, making sure hands are positioned under your shoulders, and hips over your knees.
  • Pull your core to your spine to engage your deep abdominal muscles.
  • Slide one hand away from you, keeping your arm stretched out, until your hand just leaves the floor. Hold the position for 2-5 seconds and slowly return your hand to the starting position. Always keep control of your core.
  • Repeat on alternate sides 15-20 times.
Person kneeling on floor resting forward on hand with other arm raised in front

Half superman with legs

  • Start on your hands and knees, making sure hands are positioned under your shoulders, and hips over your knees.
  • Pull your core to your spine to engage your deep abdominal muscles.
  • Slowly slide your foot away from you until your leg is straight and your foot lifts away from the floor. Hold this position for 2-5 seconds keeping your core engaged. Slowly return your foot back to the starting position.
  • Repeat on alternate legs 15-20 times.
Person on knees on the floor resting forward on hands with one leg raised behind them

Standing knee lifts

  • Stand tall with your back straight and core pulled towards your spine. Hold onto the back of a chair with one or both hands for stability if needed.
  • Exhale and slowly lift one knee up as far as is comfortable, breathe out and normally while holding the position for 2-5 seconds, maintaining control of your core. Exhale and lower your foot to the floor.
  • Repeat on alternate legs 15-20 times.
  • To make this a little harder and if your balance is good – raise both arms above your head and proceed to lift one knee at a time alternately.
Person standing behind chair with one leg raised

From 14+ weeks

Continue the previous exercises alongside these.

Toe tap

  • Lie on the bed/floor or with your knees bent up and engage your core, pulling your tummy to the spine. Exhale and pull one knee up to 90 degrees (right angle) followed by the second knee.
  • Breathe in, and on exhale tap one foot down to the floor while keeping the opposite leg still. Breathe in as you bring the leg back up and repeat on the opposite side.
  • Repeat 5 to 20 times on each side.

Full superman

  • Start on your hands and knees, making sure hands are positioned under your shoulders, and hips over your knees. Pull your core to your spine to engage your deep abdominal muscles.
  • Slowly straighten out your right leg and left arm until both your foot and hand are off the floor. Start by raising a short distance off the floor and increasing this over time, if not able to lift parallel with the body to start with. Control your pose keeping the core engaged and not overextending the arm or leg.
  • Hold the pose for a few seconds, increasing this over time.
  • Return your arm and leg slowly to the start position and repeat on the opposite side.
  • Repeat 20 times.
Person kneeling on floor with one arm and opposite leg outstretched

Recommended reading

  • The bowel cancer recovery toolkit by Sarah Russell.

Further information and support

© North Bristol NHS Trust. This edition published December 2025. Review due December 2028 NBT003636

Sarcoidosis

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What is sarcoidosis?

Sarcoidosis is a condition where lumps called granulomas develop at different sites within the body. Granulomas are made up of clusters of cells involved in inflammation. If many granulomas form in an organ, they can prevent that organ from working properly.

What causes sarcoidosis?

The exact cause of sarcoidosis is not known. It probably involves a precise combination of genetic and environmental factors. The condition does run in some families. So far, a single factor causing sarcoidosis has not been identified.

What parts of the body can be affected?

  • Sarcoidosis can affect many different parts of the body. 
  • The lungs and lymph glands in the chest are most commonly involved, affecting 9 in 10 patients with sarcoidosis. 
  • Other parts of the body that may be commonly involved are the skin, eyes and lymph glands elsewhere in the body. 
  • The joints, muscles and bones are involved in 1 in 5 patients.
  • The nerves and nervous system are involved in about 1 in 20 
    patients. 
  • The heart is involved in about 1 in 50 patients.

What are the symptoms of sarcoidosis?

The symptoms of sarcoidosis depend on which part of the body is affected. They can include: 

  • cough 
  • feeling breathless 
  • red or painful eyes 
  • swollen glands 
  • skin rashes 
  • pain in joints, muscles or bones 
  • numbness or weakness of the face, arms, or legs 

Patients with sarcoidosis may feel tired and lethargic (fatigued), lose weight or suffer with fevers and night sweats. 

Sometimes, the symptoms of sarcoidosis start suddenly and don’t last long. In other patients, the symptoms may develop gradually and last for many years. Some people don’t have any symptoms at all and are told they have sarcoidosis after having a routine chest X-ray or other investigations.

How is sarcoidosis diagnosed?

There is no single or specific test to diagnose sarcoidosis. Your specialists will take a detailed medical history and perform a thorough physical examination. You may be asked to have the following investigations:

  •  Blood tests: Your doctor may arrange blood tests to check your kidney and liver function, and your calcium levels. They may also check a marker in your blood called angiotensin-converting enzyme (ACE), which is sometimes raised in patients with sarcoidosis.
  • ECG: a tracing of the electrical activity of your heart.
  • Chest X-ray
  • Lung function tests: These are breathing tests which see how well your lungs are working. These can be used to monitor your lung disease and also to see whether it is responding to treatment. 
  • CT scan of your chest: This shows a detailed picture of your lungs. There are characteristic patterns on these pictures that can help your specialist to identify either scarring or inflammation of lung tissue.
  • PET CT: This is a scan of your body to look for areas that may be affected by sarcoidosis but might not be causing you any symptoms.
    Biopsy: Your specialist might wish to remove a small piece of tissue to confirm the diagnosis. The site of the biopsy and specific procedure performed will be discussed with you, as it depends on which parts of the body are affected. 

As sarcoidosis can affect many different parts of the body, your doctor may ask other specialists (who specialise in the part of your body affected by sarcoidosis) to look after you as well. 

The outlook

Sarcoidosis gets better without treatment in most patients (around 60%). In others, the condition persists and may require some treatment. In the minority of patients that develop a more serious form of the disease, more aggressive and prolonged treatment is sometimes required.

Sometimes symptoms may suddenly get worse - this is known as a ‘flare-up’. This may be triggered by stress, infections, a change in environment or, often, nothing recognisable. 

A much smaller proportion of patients develop permanent scarring of their lungs (called pulmonary fibrosis). 

How is sarcoidosis treated?

Treatment may be required for patients whose sarcoidosis is causing severe symptoms or is preventing the affected organ(s) from functioning normally.

Medications

Steroids are produced naturally in the body by the adrenal gland. Additional steroid in the form of prednisolone can be given to attempt to reduce inflammation in some patients. 

They are usually given in tablet form but may be given by injection into a vein. If you are prescribed steroid tablets on a long-term basis, you should not stop them abruptly. 

You will be given a ‘steroid emergency card’ which you should always carry with you. 
The specialist may also assess the need for bone protection medication and anti-reflux treatment to protect against some side effects whilst on steroids.

Sometimes corticosteroids may not be completely effective, or cause side effects. Other medications may be used, either alone or in combination, to help reduce the steroid dose. These are often called ‘immunosuppressive’ or ‘steroid-sparing’ medications. Methotrexate, Mycophenolate mofetil and 
Azathioprine are commonly used. 

Whilst you are taking immunosuppressant medication you will require regular blood tests to monitor your response to 
treatment.

Clinical trials

You should also discuss with your team if there are any clinical trials in which you can participate. Clinical trials are voluntary research studies, which are designed to answer specific questions about your care or the safety and/or effectiveness of medications.

How can I help myself?

Have your annual respiratory vaccinations (COVID-19 and Flu) and the pneumonia vaccination (you only have this once).

You may be eligible for a variety of benefits such as Attendance Allowance or Personal Independence Payment if you need help with personal care or getting about.

Our specialist nurses run a regular Pulmonary Fibrosis Support Group which is a space for discussion with other patients with similar lung problems. Here we also aim to provide several presentations from a variety of guest speakers and charities. 

Keep active and do what you enjoy!

Resources

© North Bristol NHS Trust. This edition published June 2023. Review due June 2026. NBT002701

Sickle and Thalassaemia Screening

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Antenatal and Newborn Screening for Sickle and Thalassaemia (SCT)

Background:

Haemoglobinopathies are a group of inherited blood disorders that fall into two main categories: haemoglobin variants, such as sickle cell, and thalassaemias. If a person is a carrier of the sickle cell or thalassaemia gene it can be passed onto the baby. All pregnant people in England who have accepted screening will have laboratory testing for haemoglobin variants and thalassaemia. If the mother is found to be a carrier, screening may also be offered to the father. 

Haematology Department:

The department of Haematology provides a Sickle Cell and Thalassaemia (SCT) Screening service for antenatal patients in North Bristol and offers a confirmatory service for the newborn screening provided by Clinical Biochemistry. For further information on newborn blood spot testing please see the following page (newborn-screening).

The SCT screening provided by the laboratory follows the government’s published  handbook for antenatal laboratories and handbook for newborn laboratories which set out interpretation and reporting guidelines, including which types of sickle and thalassaemia carrier states to report.
SCT testing on antenatal patients is undertaken on whole blood samples taken at booking, preferably before 10 weeks gestation. This allows for prenatal diagnosis (PND) to be offered to at risk women and couples by 12 weeks + 6 days of pregnancy. Early detection of SCT through screening allows for personal informed choice, timely counselling, clinical monitoring and preparation for those patients identified as having an “at risk” pregnancy.

As well as the general sample labelling requirements, it’s also necessary for the patients’ family origin questionnaire (FOQ) to be completed either on the reverse of the antenatal form or by following prompts when requesting on ICE. Our UKAS accredited laboratory currently screens approximately 7,000 pregnant people each year and confirms results for approximately 500 babies for the newborn screening laboratory.

The SCT screening programme is provided in close collaboration with health care professionals throughout the region
 

Analysis:

Initial screening is performed on our primary analyser using capillary electrophoresis (CE). 

Sebia Analyser used for Sickle Cell and Thalassaemia Screening

Abnormal samples are then reanalysed using isoelectric focussing (IEF). IEF separates the proteins into bands allowing our skilled biomedical scientists to identify the types of haemoglobins.    

Isoelectric Focussing Gel separates the proteins into bands.

Quality Assurance:

Turnaround times (TATs), standards and key performance indicators (KPIs) are used to continually monitor the performance of the laboratory service.

The laboratory is accredited by UKAS under ISO15189 registration number 8066 and participates in UK NEQAS Quality Assurance Scheme.

Screening laboratories must be able to release > 90% of antenatal results, interim reports and requests for repeat tests in < 3 working days in accordance with SCT screening standards.

Developments:

We report our rare, affected babies (those with suspected severe disease) on a named patient basis, and this is to the newborn outcomes solution (which reports to NCARDRS)

https://www.gov.uk/government/publications/sickle-cell-and-thalassaemia-screening-newborn-outcomes-system/sct-newborn-outcomes-system-overview#national-congenital-anomaly-and-rare-disease-registration-service-ncardrs
https://nww.mdsas.nhs.uk/Newborn/

All patient leaflets are held centrally and are available on the government website: 
https://www.gov.uk/government/collections/screening-in-pregnancy-information-leaflets#sickle-cell-and-thalassaemia

Laboratory Visits:

We offer half-day training sessions to midwives, health visitors, nurses, doctors and other allied healthcare professionals involved in the collection of samples. Please contact us to arrange a visit.

Please see below  for responses to our most recent survey

Key Contacts for Haematology Laboratory

Dr Sophie Otton
Clinical Lead for SCT & Consultant Haematologist 
Via Haematology secretaries - Telephone: 0117 414 8401

Reginah Visser
Principal Clinical Scientist 

Jemma Cable
Clinical Scientist

Grace Van Der Mee
Lead Biomedical Scientist

Helen Izzard
Senior Biomedical Scientist

Pathology Sciences Laboratory
Southmead Hospital
Westbury-on-Trym
Bristol
BS10 5NB
Email: NBTHaemoglobinopathyService@nbt.nhs.uk
Telephone: 0117 414 7121 / 0117 414 8356

Opening times: 9am - 5pm Monday - Friday excluding bank holidays.

Clinical advice & interpretation is available during working hours.

Q-Pulse Ref HA/WE/008 V3

Screening Babies in Hospital Specialist Units

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Information for Healthcare Professionals

If babies are born before 32 weeks gestation or are admitted to a hospital specialist unit for other reasons, extra blood spot samples may be required to carry out the newborn screening tests. 

To ensure preterm infants are appropriately screened for CHT, all babies born at less than 32 weeks (less than or equal to 31 weeks + 6 days) should be offered a preterm repeat test at 28 days of age or discharge home, whichever is the sooner.

Babies less than 5 days of age should have a single circle bloodspot sample taken on admission/prior to blood transfusion to screen for SCD. The bloodspot card should be marked 'Pre-transfusion'.

Detailed instructions regarding sample collection from babies in specialist units can be found on pages 23-26 of 'Guidelines for Newborn Bloodspot Sampling'.

Access to Results

Designated clinicians will be informed immediately of any 'Suspected' results.

Certain healthcare professionals may access results via the Failsafe IT solution. If you are concerned that a baby has missed screening or that a sample has not arrived in the laboratory, please telephone or email us. Samples usually take several days to reach us in the post, although this is faster if a courier is used. One working day after they have been entered on our computer system they will appear on the failsafe shown as 'pending', these samples are undergoing analysis.

Please use the NHS number to search for babies, checking that the address shown matches your records as many babies have similar names, very similar dates of birth and surnames often change in the first few weeks of life.

Contact Newborn Screening

Newborn Screening Laboratory (Bristol)
PO Box 407
Bristol
BS9 0EA

Email: newbornscreening@nbt.nhs.uk
Telephone: 0117 414 8412
 

Opening times: 9am - 5pm Monday - Friday excluding bank holidays.

Clinical advice & interpretation is available during working hours.

Access the NHS Blood Spot Screening Programme Centre

Screening Babies in Hospital Specialist Units

Blood Spot Sampling & Transport

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Labelling the blood spot card

Points to remember:

  • It is ESSENTIAL that the blood spot card is completed correctly with all the details of the baby whose blood is collected (including the NHS number). Samples received without an NHS number will not be processed.
  • These details must be filled in BEFORE the heel prick is carried out, to make sure there is no chance of a mix-up.
  • If there is an indication that any incorrect information may have been provided on a bloodspot card, you must inform the laboratory immediately.
  • Do not assume that printed labels in the baby's child health record are accurate, it is important to check the details each time you use them.
  • There is no need to indicate whether the baby is breastfeeding or bottle-feeding.

Information for parents

The NHS Newborn Blood Spot Test website includes information about each condition, FAQ's and links to further information.

The Screening Tests for You and Your Baby leaflet contains information about the blood spot screening test and the conditions it screens for. It is available in other languages.

Find out what happens to your baby's blood spot card.

Collecting the sample

A full guideline and quick reference guide are available here.

e-Learning for Healthcare has developed an e-learning module to support midwives and other sample takes in obtaining good quality newborn blood spot samples: https://www.e-lfh.org.uk/programmes/nhs-screening-programmes/

 

 of an acceptable quality sample, with correctly completed details. 

Transportation

The blood spots should be allowed to air-dry thoroughly, away from direct sunlight before placing in the transparent paper (Glassine) envelope provided (not plastic as this may cause the specimen to 'sweat') and sent, by first class post or courier on the day of collection, in a sturdy envelope.  If not possible, despatch within 24 hours of taking the sample. Despatch should not be delayed in order to batch cards together for postage.

Contact Newborn Screening

Newborn Screening Laboratory (Bristol)
PO Box 407
Bristol
BS9 0EA

Email: newbornscreening@nbt.nhs.uk
Telephone: 0117 414 8412
 

Opening times: 9am - 5pm Monday - Friday excluding bank holidays.

Clinical advice & interpretation is available during working hours.

Access the NHS Blood Spot Screening Programme Centre

Blood Spot Sampling & Transport