Delirium: guidance for relatives

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This page explains what delirium is, and how you can support your relative experiencing delirium. We hope it answers your questions and helps with your relative’s recovery.

There is further information and resources at the end of the page.

What is delirium?

Delirium is a state of confusion that can happen when someone is medically unwell. It affects about 2 in 10 hospital patients but is more common in older people whose thinking skills might not be as strong as before. It can be frightening for the person who is unwell and for those around them.

Delirium can look very different for different people. Your relative may be very agitated and upset and may try to get out of bed or remove medical tubes like cannulas. This is hyperactive delirium. Or they may not talk, stay very still, or seem very depressed. This is hypoactive delirium, and it can be harder to spot as the person will not be able to say what is wrong.

What is it like to have delirium?

Your relative may:

  • Be less aware of what is going on around them.
  • Be unsure of where they are or what they are doing there.
  • Have vivid, frightening dreams, which may continue when they wake up.
  • Hear noises or voices when there is nothing or no one there to cause them.
  • See people or things which are not there.
  • Worry that other people are trying to harm them.
  • Be acutely confused and agitated, struggle to think clearly or be sleepy/drowsy. Some people may fluctuate in symptoms.
  • Sleep during the day but be more awake at night.

Who is at risk of developing delirium?

  • Older people.
  • People with memory problems/dementia.
  • People who have poor hearing or eyesight.
  • Severely ill people.
  • People who have had surgery.
  • People with an infection.
  • People who are dehydrated.
  • People who are terminally ill.
  • People who have suddenly stopped drugs or alcohol.
  • People who take certain medication such as painkillers and steroids.
  • People who have constipation.

How is delirium treated?

To treat delirium, we need to find and treat the cause - which can be different for each person. Common causes include infection, dehydration, constipation, and pain. Your relative may have more than one cause, for example a urinary infection, constipation, and dehydration.

Treatment will depend on the causse and may include antibiotics, fluids through a drip, help to eat and drink, and medicines to reduce agitation if needed.

A personalised care plan will be written with you. It will be reviewed and monitored by the Occupational Therapist.

How long does it take to get better?

After treatment, delirium can take days or weeks to fully go away. For some people, it can have lasting effects. It is important to see whether your relative recovers more quickly at home before making important decisions about future care.

Medical staff will let their GP know that they have had delirium in their hospital discharge letter. The GP can assess this after discharge and refer on to other services if further support is needed. It is important that you know what information has been shared so you can ask for a review appointment with the GP.

What can you do to help?

You know your relative best. If you notice they are acting very differently to normal, or appear very upset, please let the staff know.

Tips:

Help to orient them to time – talk about the day, date, and the weather.

  • Help to orient them to place – remind them they are in hospital and that they are safe.
  • Delirium can disrupt a person’s sleep-wake cycle. As much as possible, help them keep to their usual sleep-wake cycle so that they spend more time awake during daylight hours. This may include waking them when they doze during the day. Even though this can seem unkind, it will maximise their sleep during the night.
  • Try to help them access as much light as possible during the daytime – if possible, help them access the Costa garden or ask staff for help with this.
  • Try not to argue, dismiss, or encourage any delusions/hallucinations the person experiences. You can tell them you understand how scary and stressfulthings must feel for them – talk to them as a rationalperson having a strange experience.
  • If your relative directly asks you about whether you agree with a delusion/hallucination, you can say it seems unlikely to you but you’re open to learning otherwise.

Checklist

  • If your relative uses hearing aids or glasses, make sure they have these on the ward and wear them. You can ask staff for help with this.
  • Think of activities that may be able to keep them alert and focused where possible.
  • Bringing in familiar items may help reassure your relative and focus on the here and now. Some examples could be:
    • Own day clothes – not just nighties/pyjamas.
    • Looking at pictures of loved ones.
    • Pictures of previous holidays.
    • Listening to calming music.
    • Listening to familiar audiobooks.
    • Smell of a familiar perfume.

Useful contacts

Ward staff should always be the first people you ask for more information.

© North Bristol NHS Trust. This edition published October 2025. Review due October 2028. NBT003816.

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Physiotherapy advice after mesh removal surgery

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Introduction

This information aims to help guide you through your recovery from your mesh removal surgery.

Length of stay

The length of stay in hospital after your operation will vary, some people can go home one day after their operation, but others will need longer.

After your operation

It is recommended that you get out of bed the same day as your operation, this will reduce your risk of blood clots and you are less likely to develop a chest infection. Moving around will also help if you have trapped wind and it encourages your bowel to recover quicker and return to its normal habits.

The nursing team will ensure you have adequate pain relief before getting out of bed. If your pain is not well controlled, please speak to your nurse. Please be aware that it is normal to have some pain after your procedure which can last for some time.

Breathing exercises

It is important to perform deep breathing exercises after your operation to reduce the risk of developing a chest infection.

  • Do this by taking 3 deep breaths, feeling your lower ribs move.
  • Repeat this every hour throughout the day.

If you need to cough after your operation, place a rolled-up towel across your abdomen and apply pressure. If you have had vaginal surgery, put your hand over the pad to support the perineum (the area between your vagina and back passage) when coughing.

Circulation

Regular movement of your legs is essential while you are less active than usual. Move your feet up and down at the ankles for 30 seconds every half an hour when you are in bed or sitting. You will also be given support stockings to wear whilst your mobility is reduced following your operation.

Getting out of bed

  • Bend your knees up one at a time.
  • Keep knees together and roll onto your side.
  • Push up into sitting with your arms, at the same time lower your legs over the side of the bed.
  • If you have had abdominal surgery you can support your incision with a rolled-up towel.

You can expect pain after your surgery. You will be provided with painkillers on discharge. Some painkillers, such as codeine, can cause constipation. Therefore, make sure to consume a high fibre diet and drink plenty of water to avoid constipation. Taking painkillers to reduce your pain will ensure that you get out of bed sooner and will therefore speed up your recovery and reduce the risk of blood clots.

Packs

You may have a pack (small gauze similar to a tampon) in your vagina to reduce the risk of bleeding. This will be removed by a nurse while you are in hospital.

Vaginal bleeding

You may have some vaginal bleeding for 6-8 weeks after your surgery. This is normal. However, if the bleeding becomes heavy or there is an offensive smell, you need to contact your GP or the hospital as this may signify an infection. Use sanitary towels instead of tampons to reduce the risk of infection.

Advice on going to the toilet

Bladder

You will have a urinary catheter (tube into your bladder to help it drain) in place after your operation that will be removed in hospital or in some cases you may be required to go home with the catheter still in place.

Once your catheter is removed you can go to the bathroom to empty your bladder. Ensure you sit on the toilet properly and relax your breathing. If you are struggling to empty your bladder it is important to speak to your nurse or GP. They will measure how much urine you pass and scan your bladder to determine how much is left.

You may notice that your urine flow is slower and it may take longer to empty your bladder. This should settle with time. If you have any symptoms of a urinary tract infection (UTI), e.g. burning when passing urine, offensive smelling urine or you are going to the toilet more often, please see your GP.

It is important to ensure you drink enough after your operation, approximately 1.5 to 2 litres per day, little and often is best. Try to avoid caffeinated drinks, fizzy drinks and alcohol as these may irritate your bladder and cause urgency. Drinking less frequently can make your urine more concentrated which can also irritate your bladder. 

Try to avoid going to the toilet ‘just in case’ even if you have a fear of leaking as this can lead to poor bladder habits. There is over a 50% chance that your original urinary leakage will come back after your surgery, but this leaflet will teach you how to do pelvic floor exercises to hopefully improve this.

Bowels

It is important to avoid constipation after your operation as this puts extra strain on your pelvic floor muscles and potentially your operation site.

To prevent constipation, make sure you drink plenty of fluid, increase the fibre content in your diet and if necessary, use laxatives. Your doctor can prescribe these for you to take whilst in hospital and at home.

Correct toilet sitting position
  • Sit on the toilet a with a stool under your feet, as shown in the image on page 6.
  • Do not strain and keep your tummy muscles relaxed.
  • It is helpful to take a slow breath in through your nose so that your stomach moves outwards, and your chest remains still and then exhale through pursed lips.
  • You may also find it useful to support your perineum (the area between your back passage and your vagina), when opening your bowels. Please see the image below.
Supporting perinuem

Exercises

Pelvic floor exercises

Female pelvic floor muscles

Your pelvic floor muscles are a sling of muscles from the pubic bone at the front of your pelvis to the coccyx and sacrum at the back of your pelvis. They help to support the bowel, bladder and uterus, maintain bladder and bowel control, support the pelvis and aid sexual function.

It is important to strengthen these muscles leading up to and after your operation. Once your catheter has been removed and you can pass urine, you can gently start these exercises as soon as you are able to.

To contract your pelvic floor, tighten your back passage – as if you are stopping yourself passing wind. At the same time, tighten your vagina. Women used to be told to practice their pelvic floor muscle training by stopping the flow of urine. This is no longer recommended as it can affect your bladder function in the long term. Try to feel the muscles lifting upwards and forwards towards the pubic bone. Feel the muscles working together. Then relax, let go and feel the muscles return to their starting position. Try not to squeeze your buttocks or leg muscles. Avoid holding your breath and just continue to breathe normally. 

To begin with, especially if you haven’t practiced these exercises before, you might lack confidence. Keep practicing the above and when you’ve mastered simply contracting and relaxing, move onto the next exercises. There are two different recommended pelvic floor exercises:

Exercise 1 - Slow pull-ups

  • Tighten the pelvic floor muscles slowly. Continue to tighten for the length of the hold, relax, and feel the muscle let go. How many seconds can you hold the contraction for?
  • Aim for 5 seconds to begin with, when you let go – can you feel the muscles relax?
  • If not, you have held the contraction for too long, try again with a shorter hold – even just one second. Some women may only be able to only hold for 1-2 seconds. Others as many as 8-10 seconds. Don’t worry if you are not able to feel very much to start off with. It may take a bit of practice so keep going. The key is to discover your hold time, and gradually build this up to a maximum of 10 seconds. And don’t forget, keep breathing normally throughout.
  • Rest for roughly 5 seconds in between each contraction, to ensure that the muscles have fully relaxed. Repeat this 5 times. As it gets easier, gradually increase the length of hold, and number of repetitions (aim for 10 long squeezes for 10 seconds each).

Exercise 2 - Fast pull-ups

  • Tighten the pelvic floor muscles quickly. Let go straight away.
  • Wait for a second.
  • Repeat this 10 times and as you get more confident aim for approximately 1 contraction per second.

Pelvic floor exercise routine

Do exercise 1 and 2 during each session. As soon as you can, increase to 10 slow and 10 fast pull-ups. Aim to repeat each session at least 3 times a day. When you start, do the exercises lying or sitting. As your muscles get stronger progress to standing.

Do not expect immediate improvement – but do not give up. As the muscles get stronger you will be able to increase your hold time and number of repetitions. See our pelvic floor video to help guide you: Pelvic Floor Muscle Training 

Top tips

Try to get in the habit of tightening your pelvic floor muscles before you cough, sneeze or lift anything. If you are unable to correctly contract your pelvic floor muscles please speak to your nurse or consultant and they can refer you to pelvic health physiotherapy for a 1:1 session.

Abdominal exercises

After your operation it is important to start strengthening your deep abdominal muscles called Tranversus Abdominis. They work together with your pelvic floor muscles to provide support for your spine and internal organs.

Deep core muscles

Deep core muscle exercise
  • Lying on your back let your tummy relax, breath in gently.
  • As you breathe out gently pull in the lower part of your tummy, hold for 5 seconds, and repeat 5 times.
  • Do not move your back.
  • You should be able to breathe and talk whilst exercising. This can also be done sitting or standing.

Pelvic tilting

Pelvic tilting exerciise
  • Lie on your back with your knees bent.
  • Pull your tummy in and flatten your back on the bed.
  • Hold, and then relax.
  • Do not hold your breath.
  • Repeat 5-10 times twice daily.

For exercise progressions please read: POGP Fit following surgery advice and exercise following gynaecological surgery leaflet (refer to the reference list).

General guidelines for returning to activity

It is normal to feel tired after your operation. Everyone recovers at different rates after surgery, but ensuring you have enough rest is important, as well as gradually building up your activity levels. This will assist your recovery and help reduce post-operative complications.

The following table should be used as a general guide.

Removal of mesh surgery
Healing stageActivities
0 - 2 weeksNo heavy lifting, e.g. no heavier than a full kettle. Short walks close to home for the first few days and then gradually increase your distance. Pelvic floor exercises and gentle abdominal exercises.
2 - 4 weeksNo heavy lifting, e.g. no heavier than a full kettle. Short walks gradually increasing your distance. Continue with pelvic floor and abdominal exercises. 
4 - 6 weeksReturn to normal everyday activities. Continue with pelvic floor exercises.
6+ weeksReturn to strenuous activities e.g. running. Increase your lifting. Continue with pelvic floor exercises.

More information 

If you are unsure about starting an activity or sport that requires heavy lifting or straining, please discuss this with your consultant.

For more information on recovering well from mesh removal surgery, please visit: The British Society of Urogynaecology (BSUG)

Driving

Do not drive until you are confident you can do an emergency stop. If you have undergone abdominal surgery, we advise you not to drive for at least 4 - 6 weeks but check with your insurance company regarding your policy.

Sex

You should avoid sexual intercourse for the first 6 weeks following surgery, ensuring any bleeding has stopped. This will allow tissues to heal and reduce the risk of developing an infection. It is important that you wait until you feel ready and use sufficient lubrication.

If you are concerned or intercourse remains uncomfortable after 3 - 4 months, it is a good idea to discuss this with your GP.

References

Removal of a retropubic mesh sling

Home | The British Association of Urological Surgeons Limited

Anterior vaginal wall repair without the use of mesh

Home | The British Association of Urological Surgeons Limited

Recovery Guide Following Vaginal Repair Surgery/Vaginal Hysterectomy

Home - Your Pelvic Floor

Fit following Surgery advice and exercise following gynaecological surgery.

Resources | POGP

Leaflets from the Royal College of Obstetrics and Gynaecologists

  • Laparoscopic hysterectomy.
  • Pelvic floor repair.
  • Vaginal hysterectomy.
  • Abdominal hysterectomy.

Browse our patient information | RCOG

© North Bristol NHS Trust. This edition published August 2023. Review due August 2026. NBT003580

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Sleep Deprived Electroencephalography (SDEEG)

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Please read this information carefully before coming in for your Sleep Deprived Electroencephalography (SDEEG)

What is an SDEEG?

SDEEG stands for Sleep Deprived EEG. It is a recording of the electrical signals from the brain, whilst you are awake and asleep. An EEG looks at how the brain is working instead of taking images you would see in a scan. It is a non-invasive, painless procedure and you will not have to shave or cut your hair.

Why have an SDEEG?

You may be referred for an SDEEG if you have been experiencing possible fits, seizures, faints, or funny turns. The SDEEG will assess your ongoing electrical brain activity.

What happens during an SDEEG?

An SDEEG take around 90 minutes in total. 20-30 minutes of this time involves measuring your head, and attaching small electrodes with a sticky paste. The rest of the time is to take the recording.

Your head will be measured, then rubbed gently before 28 small metal electrodes attached to wires are applied using a soluble sticky paste. Two electrodes will also be applied to your arms or shoulders to measure your heart rate during the EEG.

You will be asked to relax on a bed with your eyes closed, the lights will be turned off and you will be allowed to drift off to sleep.

Sleep deprived EEG

For this test we ask you to stay awake for a full night before coming to the appointment. This will mean you are very tired and more likely to fall asleep during the recording.

A video will also be recorded alongside the EEG which can be useful if you have any symptoms during the recording.

Once the recording has finished all electrodes will be removed and your head wiped with warm water. You may still need to wash your hair when you get home.

Preparing for the test

  • You must arrive with clean, dry hair free from grease, gel, wax or other hair products. You may wish to bring a comb or brush to tidy your hair after the test.
  • We also ask that you avoid drinking coffee or other caffeinated drinks before the test as this can affect your ability to fall asleep. You should have something to eat before coming for the test, preferably within 1.5 hours as you are more likely to sleep if you are full.
  • Continue to take all regular medication as normal prior to the test.
  • You will be asked if you understand this information and whether you consent to the test before we start. At your appointment, you are welcome to ask the neurophysiologist doing the test to give you any further information or to explain more about the procedure.

When will I get my results?

You will not get your results straight after the test or see a doctor on the day as the SDEEG needs to be fully analysed.

A full report will be sent to the GP or consultant who referred you within 2 weeks, they will then contact you to discuss the results. Please note, results are not sent directly to you.

Contact details

This information is intended as a guideline only. If you have any further questions about your test (excluding about results) please contact the department on the numbers on the back of this leaflet and a member of staff will be happy to help.

Your responsibility as a patient

Outpatient services at North Bristol NHS Trust are in great demand. Even so, every week an average of 600 patients fail to attend, which wastes appointments. Please tell us with as much notice as possible if you no longer need your appointment and we can allocate this to another patient.

What if I am unwell or need to change my appointment?

If you have an infectious condition, such as COVID-19, measles, mumps, chickenpox, flu, stomach upset, have head lice, or are unable to attend your appointment for any other reason, please let us know with as much notice as possible so that your appointment can be rescheduled and offered to someone else.

If you want to change the appointment for a second time, we cannot offer you another date unless in exceptional circumstances.

What if I don’t attend?

We will assume that you no longer require your appointment, and we will not offer you another one. We will write to the consultant/doctor who referred you and inform them that you did not attend.

© North Bristol NHS Trust. This edition published July 2025. Review due July 2028. NBT003799.

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Newborn Screening

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A peice of equipment within the Laboratory that screens for conditions

The department of Clinical Biochemistry provide the Newborn Bloodspot Screening service for a large part of the South West Region. Testing is undertaken on filter paper bloodspots which are collected from babies when they are 5 days old. Our UKAS accredited laboratory currently screens approximately 35,000 babies each year for ten conditions:

  • Sickle cell disease (SCD)
  • Cystic Fibrosis (CF)
  • Congenital Hypothyroidism (CHT)
  • Inherited Metabolic Diseases:
    • Phenylketonuria (PKU)
    • Medium-chain acyl-CoA dehydrogenase deficiency (MCADD)
    • Maple syrup urine disease (MSUD)
    • Isovaleric acidaemia (IVA)
    • Glutaric aciduria type 1 (GA1)
    • Homocystinuria (pyridoxine unresponsive) (HCU)
    • Hereditary Tyrosinaemia type 1 (HT1)

Early detection through screening and prompt treatment significantly reduces the morbidity and mortality associated with these conditions.
The newborn screening bloodspot programme is provided in close collaboration with health care professionals throughout the region.

Screening for SCD is provided with the department of Haematology at North Bristol NHS Trust (NBT) and Cystic Fibrosis with the Bristol Genetics Laboratory

Information for public and professionals regarding the SCID evaluation.

The screening laboratory works very closely with the South West Regional Metabolic Biochemistry laboratory, co-located with the Newborn SCreening Laboratory, which provides diagnostic testing to support the newborn screening programmes and monitoring of patients identified though the Inherited Metabolic Disease screening programmes. Bloodspot testing for PKU, hypothyroidism (TSH) and a monitoring service for Congenital Adrenal Hyperplasia (17-OHP) is also available.

All of our screening results are uploaded to the Newborn Blood Spot Failsafe Solution (NBSFS) on a daily basis. This is a national web-based solution which allows maternity units, child health record departments, and screening laboratories to verify the screening status of any baby registered in England. It enables easy early identification of those babies who have had no blood spot card received in the laboratory, making it less likely that any babies will miss screening, and also promotes timeliness of repeat sampling.

Laboratory Visits

We offer half-day training sessions to midwives, health visitors, dieticians, nurses, doctors and other healthcare professionals involved in the collection of bloodspots. Please contact us to arrange a visit.

Please see below for responses to our most recent user survey

Key Contacts

Dr Helena Kemp
Director of Newborn Screening & Consultant Chemical Pathologist
Telephone: 0117 4148425

Maryam Khan
Principal Clinical Scientist
Telephone: 0117 4148418

Emma Smith-Thomas
Senior Clinical Scientist
Telephone: 0117 4148427

Dr Sophie Otton
Consultant Haematologist
Telephone: 0117 4148359

Grace VanDerMee
Lead Biomedical Scientist - Haematology
Telephone: 0117 4148356

Rebecca Whittington
Principal Clinical Scientist - Genetics
Telephone: 0117 4146175

Clare Le Masurier
Senior Biomedical Scientist
Telephone: 0117 4148430

Bryony Wright
Senior Biomedical Scientist
Telephone: 0117 4148346

Contact Newborn Screening

Newborn Screening Laboratory (Bristol)
PO Box 407
Bristol
BS9 0EA

Email: newbornscreening@nbt.nhs.uk
Telephone: 0117 414 8412
 

Opening times: 9am - 5pm Monday - Friday excluding bank holidays.

Clinical advice & interpretation is available during working hours.

Access the NHS Blood Spot Screening Programme Centre

Newborn Screening

Newborn Screening Useful Links

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Contact Newborn Screening

Newborn Screening Laboratory (Bristol)
PO Box 407
Bristol
BS9 0EA

Email: newbornscreening@nbt.nhs.uk
Telephone: 0117 414 8412
 

Opening times: 9am - 5pm Monday - Friday excluding bank holidays.

Clinical advice & interpretation is available during working hours.

Access the NHS Blood Spot Screening Programme Centre

Newborn Screening Useful Links

Newborn Screening Quality Management

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Extended Screening Policy

Turn around time & Quality standards 

The UK National Screening Committee sets national standards for newborn screening. Several of these relate to turn-around time and availability of results.

Midwives

  • Timely receipt: Samples should be received by the laboratory in less than or equal to 3 working days after sample collection.
  • Avoidable repeat rate: Acceptable level 2.0%, Achievable level ≤1.0%.
  • Timeliness of repeat sample collection:
    • Following a borderline CHT result, repeat samples should be collected 7-10 days after the initial sample. (Acceptable level: ≥ 80.0%, Achievable level: ≥ 90.0%)
    • Following a CF inconclusive result, samples should be collected at 21-24 days of age. (Acceptable level: ≥ 80.0%, Achievable level: ≥ 90.0%)

Laboratory

  • Once the sample has been received by the laboratory, positive screening results for IMDs and CHT should be available and clinical referral initiated within 3 working days of sample receipt.

Receipt into clinical care:

  • Babies in whom an inherited metabolic disease is suspected through newborn screening should attend their first clinical appointment by 14 days of age. Targets for babies in whom CHT, SCD or CF is suspected vary between 14 and 35 days of age depending on the number of samples collected and types of tests performed in the diagnostic algorithm. 

Timeliness of results to parents:

  • Letters to parents from the child health record departments for babies in which NONE of the 9 conditions are suspected, must be sent at ≤ 6 weeks of birth, or ≤ 6 weeks of notification of movement into the area.

Laboratory Quality Assurance

Within our UKAS Accredited laboratory, we strive to provide results of excellent quality. To ensure that we continue to improve our service we hold regular quality meetings, perform a detailed annual audit and have annual governance regional meetings. We also participate in the following external quality assurance schemes:

 

  • UKNEQAS for Newborn Screening (includes Phe, Tyr, TSH, IRT, C8, C10, C8/C10, C5, C5DC, Leu, Met, succinylacetone)
  • UKNEQAS Sickle cell screening

Contact Newborn Screening

Newborn Screening Laboratory (Bristol)
PO Box 407
Bristol
BS9 0EA

Email: newbornscreening@nbt.nhs.uk
Telephone: 0117 414 8412
 

Opening times: 9am - 5pm Monday - Friday excluding bank holidays.

Clinical advice & interpretation is available during working hours.

Access the NHS Blood Spot Screening Programme Centre

Blood Spot Quality Management

Newborn Screening FAQ's

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Has the sample I sent recently arrived in the lab yet? How can I check?

The Northgate Failsafe system is updated in the morning of each working day. If the sample has arrived and been booked in it will show on the failsafe as pending. Please bear in mind that sometimes the post is slow, especially around bank holidays. If you don’t have access to the failsafe system, then contact your local screening coordinator in the first instance. We receive a high volume of calls which directly impacts on the speed we can open post and book in and process samples.

We are happy to receive phone calls if you, a colleague or the screening coordinator have checked the failsafe already and the sample isn’t showing and the sample was posted at least 5 days ago.

Why has the sample I collected been rejected?

When samples that are unsuitable for testing arrive, we record the reason for rejection. This information is given to the midwifery team / screening coordinator when we contact them to organise for the repeat to be collected.
The reason will also be shown on the Northgate failsafe system.
Further details including common reasons for sample rejection, tips and learning resources can be found on our ‘Repeat samples and Limitations of testing’ page.

Once you are aware of the reason for rejection and would find it helpful to see a picture of the sample you collected for educational purposes, please email us.

When will the results be available

The aim is for all babies suspected of having any of the screened conditions, to be seen by the appropriate clinical team and treatment started in a timely manner. The child health record departments (CHRDs) keep track of which babies have been screened. Ideally, the lab should provide the CHRD with results by 17 days of age (for all babies with normal results for all 9 conditions).
Parents with a not suspected result for each of the conditions should have a not suspected results letter sent directly to them by the CHRD within 6 weeks of birth.  They will be contacted sooner if there is thought to be any problem with their baby.


General timescales:
The first blood spot sample should be taken at 5 days of age, and national standards state it should arrive in the lab within 3 working days. Samples are booked into the laboratory computer system on the day of receipt and appear as pending on the Northgate failsafe system on the morning of the next working day. Samples are tested for all 9 conditions either the day of receipt or the following day.
Babies with positive results, suspected of having PKU, MCADD, MSUD, IVA, GA1, HT1 or CHT (on the first sample), are referred to the appropriate clinical team within 3 working days of the sample arriving in the laboratory. Testing for CF or SCD can sometimes take a little longer and for a small number of babies the screening pathway for CF and CHT requires a second sample (‘unavoidable repeat’) to be taken before a not suspected, suspected or carrier result can be reported.
Occasionally results may be delayed. Most commonly these are due to post / transport delays, especially around bank holidays, or samples arriving which are unsuitable for testing causing the need for an ‘avoidable repeat’.
Very occasionally we have technical problems such as analyser breakdowns or IT issues which may cause a delay, however, we have a number of contingencies in place to ensure the correct results are reported in a timely manner.

When does the failsafe get updated?

Data is extracted from our lab computer system automatically every night at about 11pm for upload on the morning of the next working day. Unfortunately it is not possible to change the time of this extract on demand.

Who do I contact for advice?

Our Key contacts are listed here.

Can I arrange a visit to the laboratory?

We offer half-day training sessions to midwives, health visitors, dieticians, nurses, doctors and other healthcare professionals involved in the collection of bloodspots.  Please email NewbornScreening@nbt.nhs.uk in the first instance.

Will the test show if a baby is a Cystic Fibrosis (CF) carrier?

Approximately 1 in every 25 people in the general population is a CF carrier. Our testing strategy will not detect all babies who carry the CF gene, but as part of the testing for cystic fibrosis a few carriers are identified (approx. 12-15 babies /year in the South-West region).
When this happens, information is given to the family, usually by the health visitor, as the family may wish to seek genetic counselling, especially if they are planning future pregnancies.

Will the test show if a baby is a sickle cell carrier?

Yes, the test will show if a baby is a sickle cell carrier, or a carrier of another clinically significant abnormal haemoglobin variant.

For further advice regarding the sickle cell screening programme please contact the Lead Biomedical Scientist in Haematology.

Will the test show if a baby has thalassaemia?

Some cases of thalassaemia will be detected and some not. Carriers are unlikely to be identified at this age. 

For further advice regarding the sickle cell screening programme please contact the Lead Biomedical Scientist in Haematology.

When did the Bristol Newborn Screening Laboratory start testing babies in the South West for each of the ten conditions?

Condition

Date

PKU

late 1960's

CHT

early 1980's

Sickle / Haemoglobinopathies

2005

CF

2007

MCADD

2008

Expanded screening for IMDs (GA1, IVA, HCU, MSUD)

January 2015

HT1

29th September 2025

Health professionals:  If you would like to confirm that a child has been screened for a particular condition, please contact us. Please remember that not all children currently living in the South West will have been screened for all the conditions offered at the time of birth, as some may have been born in another area/country, or the parents may not have consented to a sample being collected/tested.

Contact Newborn Screening

Newborn Screening Laboratory (Bristol)
PO Box 407
Bristol
BS9 0EA

Email: newbornscreening@nbt.nhs.uk
Telephone: 0117 414 8412
 

Opening times: 9am - 5pm Monday - Friday excluding bank holidays.

Clinical advice & interpretation is available during working hours.

Access the NHS Blood Spot Screening Programme Centre

Test Information

Sample vials for testing

Includes details of sample types, volumes, special precautions, turnaround times & reference ranges.

Routine Sample Referral to Other Laboratories

Regular Off Off

Updated on 23/12/21

NBT Metabolic Biochemistry

https://www.nbt.nhs.uk/severn-pathology/pathology-services/clinical-biochemistry/biochemical-genetics

Clinical Biochemistry
Pathology Sciences Laboratory
Southmead Hospital
Westbury-on-Trym
Bristol
BS10 5NB

Urine organic acids, blood spot acylcarnitine profiles, blood spot galactosaemia screens and plasma amino acid analysis for follow-up of positive IMD screening results.

 

NBT Bristol Genetics Laboratory

https://www.nbt.nhs.uk/severn-pathology/pathology-services/bristol-genetics-laboratory-bgl

Bristol Genetics Laboratory
Pathology Sciences
Southmead Hospital
Bristol
BS10 5NB

CF & MCADD (common variant) DNA variant analysis

 

NBT Haematology

https://www.nbt.nhs.uk/severn-pathology/pathology-services/haematology

Haematology Department
Pathology Sciences
Southmead Hospital
Bristol
BS10 5NB

Confirmation of sickle and haemoglobinopathy results by iso-electric focussing.

 

Birmingham Children’s Hospital

Department of Clinical Chemistry
The Birmingham Children's Hospital NHS Trust
Steelhouse Lane
Birmingham
B4 6NH

Biopterin analysis as part of the differential diagnoses associated with elevated phenylalanine levels. Blood spot succinylacetone analysis for HT1 diagnostic testing.

 

Red Cell Centre – Kings College Hospital

Molecular Pathology
c/o Central Specimen Reception
Blood Sciences Laboratory
Ground Floor Bessemer Wing
Kings College Hospital
Denmark Hill
London
SE5 9RS

Sickle cell disease testing by DNA, for babies that have had a blood transfusion before the blood spot sample was collected.

 

Virology – Royal Free Hospital

RRL – Specimen Reception (VIROLOGY Section)
1st Floor HSL Laboratories
Royal Free Hospital
Pond Street, Hampstead
London
NW3 2QG

CMV virology: See https://www.nbt.nhs.uk/severn-pathology/pathology-services/clinical-biochemistry/newborn-screening/blood-spot-retrieval for further information and downloadable consent form.

 

Newborn Screening Laboratory – Cardiff

Medical Biochemistry & Immunology
Heath Park
Cardiff
CF14 4XW

Bloodspot homocysteine analysis as part of the second-tier testing for Homocystinuria.

Contact Newborn Screening

Newborn Screening Laboratory (Bristol)
PO Box 407
Bristol
BS9 0EA

Email: newbornscreening@nbt.nhs.uk
Telephone: 0117 414 8412
 

Opening times: 9am - 5pm Monday - Friday excluding bank holidays.

Clinical advice & interpretation is available during working hours.

Access the NHS Blood Spot Screening Programme Centre

Routine Sample Referral to Other Laboratories

Information for patients undergoing cervical (neck) surgery

Regular Off Off

Information for patients undergoing cervical (neck) surgery

Welcome to the spinal service. This page aims to give you and your family information about your forthcoming spinal operation. It is intended to answer most of the common questions regarding your recovery, going home and returning to normal activities.

During your outpatient appointment your operation will be discussed with you by your surgeon. Elective patients are seen in Pre-Assessment clinic (NPAC) and have a chance to discuss information with a Neurosurgical Nurse Practitioner (NNP). Prior to signing a consent form you have an opportunity to ask questions and to discuss your concerns. After the operation should there have been any variation on the original operation the doctor or nurse will inform you.

Spinal anatomy (in brief)

The spinal vertebra consists of:

Term

No. of Vertebrae

Body Area

Abbreviation

Cervical

7

Neck

C1 - C7

Thoacic

12

Chest

T1 - T12

Lumbar

5 or 6

Low Back

L1 - L5

Sacrum

5 (fused)

Pelvis

S1 - S5

Coccyx

3

Tailbone

None

The intervertebral disc is firmly bonded to the vertebrae both above and below. The disc is a specialised joint which permits the spine to bend and twist. The disc has a tough fibrous outer casing and a softer water filled jelly-like interior. Running through the spinal column is the spinal cord, which contains nerves that come from the brain. Nerves from the spinal cord come out from between the vertebrae and send and receive messages to and from various parts of the body. The true spinal cord ends at approximately the L1 level.

A collection of nerve roots at the end of spinal cord is called the “cauda equina,” (means horse’s tail).

Diagram of cervical vertebrae
Diagram (c)EMIS 2010 as distributed at http://www.patient.co.uk/health/Cervical-Spondylosis.htm, used with permission.

The following conditions may contribute to your symptoms

Degeneration

This is ‘wear and tear’ of the spine. With age the disc loses water and the composition of the disc alter. This is normal and happens to us all. The reduced height of the disc leaves less space for the nerves and may cause one or more spinal nerve to be trapped.

Osteophytes (bony outgrowths or ridges) can form at the edges of the vertebrae and may cause narrowing in the spinal canal. As degeneration persists, signs and symptoms may develop. Symptoms can include: pain down the arm or into the hand, pins and needles and numbness.

Spinal Stenosis

This is narrowing of spinal canal through which the spinal nerves pass and therefore pinches one or more nerve root. This could occur as a result of degenerative process or osteophytes (bony outgrowths or ridges) can form at the edges of the vertebrae and may cause narrowing in the spinal canal. Other causes include inflammatory arthritis, trauma, previous surgery and other birth defects.

Disc prolapse or protrusion

The outer wall of the disc becomes weakened and can deteriorate with age or as a result of excessive loading. The prolapsed disc bulges out and starts to irritate spinal nerves supplying your arm. The term “slipped disc” is misleading

in that the disc cannot slip out and cannot be pushed back in. Conservative treatment that does not involve surgery, avoiding painful activity, painkillers and physiotherapy, can sometimes be enough to improve symptoms. We only offer you surgery if this type of treatment is proven to be unsuccessful or unlikely to be successful. Symptoms of a trapped spinal nerve include: neck, shoulder and/or arm pain, pins and needles, numbness, muscle weakness in your shoulder, arm and hand.

Cord Compression

Any one of the above problems could put pressure directly on the spinal cord. The symptoms are similar to those described above but can also include muscle wasting (loss of muscle bulk), difficulty in walking, balance disturbances or unsteadiness and weakness in your legs.

What investigations do I need?

Generally a MRI scan is performed to confirm the diagnosis and to identify the level of the problem. At pre-assessment clinic the nurse will take blood tests, a nasal swab to screen for MRSA screen and if problems are identified they will refer you for additional investigations such as heart trace, scans (i.e. ECG, ECHO), exercise test that are required to decide if you are suitable to undergo anaesthesia. If your blood pressure is raised you may have to visit your GP on three further occasions to make sure it is within acceptable limits. X- rays are ordered before surgery if you are to have anartificial cervical joint inserted.

What are my treatment options?

Maintaining an ideal body weight, exercises to improve posture also strengthen spinal muscles should accompany any form of treatment, surgical or conservative.

Conservative treatment such as physiotherapy, painkillers and the passage of time may reduce the symptoms. Nerve root block injections are sometimes useful as diagnostic procedures and treatment for neck and arm symptoms. In some circumstances the specialists in the pain clinic see patients before surgery is indicated for their opinion. Surgery may not be the answer to symptom relief.

Cervical surgeries

These procedures are preformed under a general anaesthetic

Cervical decompression/discectomy

This is a widely used term whereby the pressure is taken off from one or more nerves/spinal cord. Different terminologies are used for decompression based on the anatomical area that is being decompressed.

Anterior cervical decompression with fusion

The incision is from the front, just to the side of your throat. The surgeon will stabilise the vertebrae either using an interbody spacer ‘spinal cage’, or by using a bone graft taken from your hip. Sometimes a plate and screws are placed to hold and align the bones.

Anterior cervical decompression with joint

The incision is from the front, just to the side of your throat. The surgeon will use an artificial joint to replace your removed disc.

Posterior Foraminotomy

The incision is through the back of the neck. The nerve root is decompressed where it passes through the spinal foramen.

Posterior Laminectomy

Incision at the back of the neck. The entire lamina is removed from back of vertebra.

Posterior Cervical Fusion

The incision is from the back of the neck. The surgeon uses metal work (screws and rods or wiring) to fuse the cervical bones to the skull or other cervical vertebrae.

What are the risks associated with cervical spinal surgery?

Swallowing difficulties or changes to voice

You may have experienced some swallowing problems before you had your operation. For operations involving anterior approach (front of your neck), your oesophagus (food tube) and larynx (voice box) have to be moved to one side during the operation.

Following this, some patients experience temporary problems with swallowing, voice problems or breathing difficulties due to bruising or swelling. These problems often improve within weeks, but if they persist you will be referred to the speech and language therapist and, if necessary, a dietitian in the hospital. Sometimes you may be given a short course of steroids to help reduce any swelling.

Bleeding

Bleeding from the veins around the nerve and rarely require blood transfusion. You may return from surgery with a small drain in place which will be removed after 12 hours.

Wound infections

Currently our infection rate is around 1 in 100. However infections can range from minor to moderate and include redness, tenderness, improper healing or wound gaping, raised temperature. Usually it is easily treated with antibiotics. We kindly ask you to complete the issued questionnaire about your wound healing 30 days after your surgery and post it back to us.

Other types of infections include urinary tract infection and chest infection which can be treated with antibiotics.

Deep vein thrombosis (DVT)

During the weeks following surgery there is a risk that out of 100 patients between five and ten may develop a blood clot in their leg due to reduced mobility for a short period of time during and after the operation. You will be asked to wear elastic stockings before the operation and in theatre. They use mechanical pneumatic pumps & boots, both of these may be used initially in the post-op phase until you are able to mobilise. It is essential to perform deep breathing exercises to prevent any respiratory problems. Also, wriggle your toes and get out of bed as soon as advised by your surgeon. Should you remain in bed after a period of 24 hours or have reduced mobility your surgeon may prescribe a blood thinning injection until you are discharged from hospital. (Please refer to trust DVT information for further information).

Pulmonary Embolism (PE)

Occasionally a clot can break off from DVT and passes to the lungs via the heart causing PE in 1 in 1000 of patients who undergo surgery. This is a life threatening complication and needs immediate treatment.

Nerve damage

Nerve damage can occur during the operation; however this is classed as low risk in less than 1 in 100 of patients.

It can result in numbness and/or pins and needles and in rare cases significant damage to bladder and bowel function, or paralysis. You will be assessed after surgery for any of these issues by both the nursing and medical team.

Paralysis 

Although total paralysis with these types of surgeries is extremely rare, it can occur. The risk is one in several thousand.

Dural tear

The spinal cord is lined by three layers one of those layers is called the dura, which can get punctured during the operation. This then results in leakage of spinal fluid. It can occur in one to five out of 100 patients generally undergoing spinal surgery but it is rare in

cervical spine surgery. You may be advised to undertake a period of bed rest for 48-72 hours and you may experience severe headache, wound leakage of clear fluid or wound swelling. Occasionally further surgery is required.

Are there any other potential complications?

Fortunately, most complications can be treated and although they are inconvenient and cause setbacks there are no long-term consequences.

  • Bladder hesitancy: Anaesthesia can sometimes affect the bladder control and this can lead to urinary retention. Patients may be catheterised short term and if subsequently are unable to successfully pass urine normally they may be sent home with urinary catheter and referred to the local urology clinic.
  • Constipation: Some of the analgesics can cause constipation. It is important you are able to empty your bowel daily to avoid straining as it can increase your back pain and affect your bladder emptying. Daily walking, exercises, fibre rich diet, oral laxatives can help if bowels are not open for three days after which sometimes you may need a suppository.

Before Surgery

What preparation should I undertake?

We advise you to have a shower on the day or night before your surgery and wear freshly laundered clothes to the hospital. This is to minimize the risk of surgical site infections. Please avoid any perfumes or make up. We advise you to remove your nail varnish and where not possible, at least one fingernail in the case of false nail/acrylic nails should be exposed.

What time should I starve for the operation?

The hospital nil-by-mouth policy allows patients to eat six hours prior to their operation and three hours to drink clear fluids such as water/black coffee or black tea (NO milk).

Please avoid chewing gum. Please follow the instructions provided in your admission letter for the exact time. There is a chance your operation might be rescheduled.

What medication can I take prior to surgery?

Please bring your usual medications and ensure you have enough supplies. All patients can continue to take their usual medications (except those listed below) with 60mls of water even when fasting.

Special notes for table below:

  • Insulin depended patients may be put on an insulin pump on the day of your surgery while fasting.
  • These drugs are stopped a few days prior to surgery to reduce the risk of bleeding. At NPAC your ANP will take your drug history. The decision to stop is made after the ANP discusses with your spinal surgeon, weighing the risk versus benefits as you might be taking them to prevent any future cardiovascular complications.
  • To reduce the risk of thrombo-embolism during surgery.
  • Herbal medications may need to be stopped one week prior to surgery due to lack of evidence about adverse interactions with a general anaesthetic.

Please contact your ANP if you are unsure. After surgery you will be informed when to restart these medications.

Drugs When to stop 
Blood pressure medications ending with –opril and -artan
  • Lisinopril          
  • Ramipril
  • Perindopril    
  • Lorsartan
  • Candesartan
Omit on day of surgery
¹ Diabetic medications
  • Metformin         
  • Gliclazide
  • Glipizide   
  • Glibenclamide
  • Glitazones     
  • Insulin
Omit on day of surgery

² Anticoagulants and Antiplatelets

AspirinStop 7 days before surgery
Clopidogrel

Stop 10 days before surgery

Switch to Aspirin 75 mg, 10 days before surgery

Instructions to follow

  • Dipridramole     
  • Prasugrel (Persantin/Asasantin)
  • Ticagrelor

4 days before surgery

Instructions to follow

  • Warfarin          
  • Rivaroxaban
  • Dibigatran        
  • Apixaban

Instructions to follow

…… days pre-op

Other 
³ Oestrogen containing contraceptive pills and HRT4-6 weeks prior to surgery
Herbal medications1 week before surgery

After Surgery

Will I experience pain?

Most cervical microsurgery is undertaken to relieve arm pain and associated symptoms. Good relief from arm pain occurs in approximately 90 - 95% of patients. Wound pain can last for two to three days. Patients can continue to have discomfort and their symptoms as pre-op for some time following surgery, however this is expected whilst your body is healing. A prolonged sore throat can last up to one month, but usually subsides long before this time. Some patients can also experience pain across the shoulder blades and neck because the muscles have been stretched during the operation. You can begin to reduce your pain killers when you feel the pain is settling. If you are concerned or have new symptoms then please contact the spinal NNP.

What tablets will I take home with me?

You will be required to have a good stock of your usual supply of medications prior to admission. Patients usually require some pain killers for two to four weeks post operatively.

The hospital is not obliged to supply any over-the-counter medications. You may be issued with around two weeks’ worth of painkillers if any additional ‘prescription only drugs’ are required. After that time you are expected to visit your GP for additional supplies. Any medications that you brought into hospital will be returned to you on discharge, as appropriate.

  • Paracetamol – used as first-line painkiller which you should take regularly if you are still in pain at home. You can take a maximum of eight tablets in any 24 hours leaving a four hour period between doses.
  • Codeine/tramadol – mild opioid-based painkillers which can be taken in addition to paracetamol if you are still in pain. Common side effects include drowsiness and constipation.
  • Ibuprofen/diclofenac – anti-inflammatory painkillers, usually used for relatively short periods. These must be taken with food. They can also be taken in addition to paracetamol, codeine and tramadol. Avoid taking them if you have a previous history of stomach ulcers. Because codeine/tramadol can cause constipation you may also be given some laxatives, such as:
  • Senna – a laxative which usually takes effect within 12 – 24 hours.

Seek advice from your GP if you have constipation for more than three days after taking the laxatives.

At the time of stopping medications such as opiates, Gabapentin, Amitriptyline etc. we strongly advise you to slowly taper them off in small doses over a period of time to minimise withdrawal effects.

When will I be discharged home?

The estimated discharge time following routine anterior or posterior cervical microsurgery is one to two days, depending on your post operative recovery and your home circumstance. You will be reviewed on the next day of your operations by your surgical team, who will make sure you do not have any complications. An x-ray may be performed to look at the neck alignment prior to discharge, this happens following all anterior approach surgeries. When this x-ray has been checked you will be discharged home.

What should I be aware of while recovering from my operation?

Recovery after your operation may be gradual; you will not get better overnight. You may experience “off” days where you appear to be in discomfort, do not despair - this is normal. If you experience any of the below you must contact your spinal nurse practitioner in normal working hours or your GP immediately:

  • Constant pain which gets worse.
  • Existing numbness gets worse (or new numbness).
  • Muscle weakness.
  • Change in bladder function.

When should I get my wound checked?

The skin is usually closed with paper strips (steristrips) which are left in place for five to seven days. They may then be peeled off or fall of themselves. On occasion clips or sutures are used which are removed after five to seven days. If this is the case the ward nurse will provide you with the clip remover to take to your local treatment room nurse. Please book an appointment with your local surgery. You will be issued with a letter from the ward nursing staff to take to your surgery. It is important for a nurse or a family member/friend to inspect your wound to ensure good healing is taking place, looking especially for any gaping, leaking, swelling or redness.

How long will my wound take to heal?

Wound healing goes through several stages. You may experience tingling, numbness or some itching around the wound. The scar may feel a little lumpy as the new tissue forms and it may also feel tight. These are all usual features of the healing process. DO NOT be tempted to pull off any scab which acts as a protective layer as it can delay wound healing and introduce infection. Please note scarring is expected.

If you develop any redness, swelling, wound opening or discharge please contact your GP immediately who may wish to refer back to us. We strongly recommend a wound swab and bloods for infection screen are taken before treatment with any antibiotics.

Can I have a shower?

Keep the wound dry until it is healed. You may shower/ bath as long as the wound is protected. Due to the contour of the neck it may be difficult to hold the dressing in place. In which case it is alright to remove the dressing and leave the steristrips in place and have a shower/ bath from below the neck, keeping the wound area dry. You may request additional dressing from the ward nurses or your GP surgery.

When will I be able to drive?

You recommend you drive around two weeks when you feel able to control your vehicle safely including executing an emergency stop. Your surgeon may give you independent advice, please follow their instructions if different from this sheet. Please ensure you check your insurance details. If you are advised to wear a hard collar you will be unable to drive during the duration of treatment.

Will I need to wear a collar?

As a routine practice we do not advise collar use after anterior or posterior cervical surgery. Your consultant may make a decision after your operation to apply one for added support. You will then be given directions on how long you will need to wear it. Some surgeons may ask you to replace it with a soft collar at night or when you are resting in bed.

If you are supplied with a hard collar you must wear it at all times, even whilst bathing and washing your hair. The leaflet supplied with the collar will explain how to change the cushion pads and how to care for your collar and skin. You should wear collars firmly but not excessively tight, as this will make it difficult for you to swallow or breathe. If you find it difficult to raise your arms above your head to fasten the collar at the back, please ask family members or friends for help. You need to maintain a good posture while wearing your collar, carrying your head directly above your shoulders with your chin tucked in and your shoulders relaxed. Try not to rest your chin heavily on the front of the collar as this may cause your skin to become sore. If you have any concerns about your collar please contact the spine NNP.

Where can I obtain a sick certificate?

The discharging nurse can provide you with a certificate for the duration of your hospital stay. You will have to ask your GP for any further certificates.

When will I be able to return to work?

This will depend to some extent on your age, duration of pre-op symptoms, level of fitness, other medical conditions and the nature of your work. Generally, most fit patients make an uncomplicated recovery and return back to light work in two to four weeks. Take regular rest periods. If your work involves heavy manual work then you may need to speak to your consultant or GP, as this may mean that you will not be able to return to work until six to eight weeks.

Monitor where you are working to make sure you are not placing unnecessary stress on your neck.

When will I receive a follow-up appointment?

  • Telephone follow up: Neurosurgical patients will receive a call within two to four weeks weeks following discharge to check on progress and wound healing status. This will give you the opportunity to ask any questions. If you wish to clarify any issues/concerns please feel free to contact them. The spinal NNP will return any messages left on the answer phone at their earliest opportunity. Outside normal working hours, if your concern is of an urgent nature and you have had recent surgery please contact your GP surgery for medical assistance.
  • Outpatients: Usually an outpatient follow up is made for you according to what your consultant decides is the right time to follow up. This could be six to twelve weeks after discharge. Not everyone will require a follow-up appointment, but if one is offered to you it will arrive in the post from your consultant’s secretary. If you feel there is no need to see the surgeon and you are free from symptoms then please contact the appropriate secretary to cancel your appointment.

Other health professionals involved during your hospital stay

Physiotherapist

A physiotherapist may see you prior to discharge if you are admitted to the ward in the week. They will assess your mobility, posture and muscle strength and will inform the medical team if they feel you are safe for discharge. The physiotherapist can offer you advice on certain exercises to help maintain or improve your range of movement and strength, depending on the type of surgery you have had. If you have been fitted with a collar to wear for 24 hours a day for more than three weeks or if you have any mobility problems or specific issues with weakness then you will be referred to out-patient physiotherapy. More about self help from the physiotherapist in the exercise section.

Occupational therapist

Patients who have problems after surgery and are unable to cope with activities of daily living are referred to an occupational therapist in hospital.

The aim of occupational therapy is to optimise independence in everyday activities and for these activities to be performed in a manner conducive after your neck surgery. More about occupational therapy in the ‘activities of daily living’ section.

With elective surgery many of the problems experienced with everyday activities can be addressed prior to admission and should be discussed in NPAC and thus minimise possible delays in your discharge from hospital to home.

Social worker

To avoid unnecessary extended periods of hospitalisation and to avoid the risk of hospital acquired infections a patient’s social needs are assessed in NPAC. The NPAC nurse may be advised to seek the help of a community social worker prior to admission. This may be by self-referral or via GP. In some areas support may also be available from Voluntary Services e.g. British Red Cross, Age Concern. The nurse on the ward may refer you to a social worker if any new social care needs are identified after your surgery.

Speech and language therapist

If you experience problems with your swallowing or voice after surgery while you are in hospital the medical team will make a referral to a speech and language therapist. Be sure to highlight any concerns about changes in your swallowing or voice to the medical team prior to and after surgery. The speech and language therapist will assess your voice and swallowing and provide appropriate management. If problems persist further speech and language therapy will be arranged in the community.

Once you have been discharged from hospital, if swallowing/ voice problems arise, or you experience chest infections or unexplained weight loss, contact your GP who may make a referral to the community speech and language therapist. If you have breathing difficulties following your operation while in hospital an urgent medical review may be required. Any non-acute breathing problems after discharge from hospital could be seen by your GP.

If before surgery you have further questions about swallowing or voice changes that can occur following cervical spinal surgery please contact the spinal NNP who can provide you with additional information.

Exercises and advice from your physiotherapist

Exercise is a vital part of your rehabilitation following your surgery and will improve your general fitness and wellbeing. It is essential that you regularly get up and walk for short distances to ensure movement of your blood circulation and to prevent future complications. Do continue to progress your walking distances and increase your exercise tolerance over the first few weeks post op.

Guidelines for exercise:

  • Swimming – generally after six weeks, when your wound has healed.
  • Lifting - avoid heavy lifting (a full kettle) for up to six weeks post surgery and pay careful attention when bending or lifting. Please follow these steps before you start lifting.
  • Exercise classes i.e. Gym/Pilates/Tai Chi – inform your instructor about your neck surgery and seek appropriate exercises.
  • Contact sports and leisure – discuss with your consultant/ NNP who will advise you. Apply back and neck care principles in all sport and leisure pursuits. Gradually increase your activity levels within your own limits. Do not avoid activity but stretch before and after.

Please see separate sheet for exercise instructions.

The following information is for your guidance only. It is important to remember that regularly changing position will help to prevent muscles from tiring and allows your joints to move, which is essential for their nutrition.

Posture: Posture is not just a matter of adopting good positions, it is concerned with the way you move as well. Ideally carrying out all necessary activities in a relaxed and efficient way minimises the stresses on your body and saves energy.

Lying down: Whether you lay on your back or your side, please use soft pillows made of feather or foam chips so that they conform well to the shape of your head and neck. If you sleep mostly on your sides, the thickness of your pillow should match the width of you shoulder.

Sitting: It is important to maintain the hollow in the small of your back while sitting as this will help to ensure a good position for your shoulders, head and neck. You can use a

lumbar roll or a small cushion at your beltline to maintain this position, and you should ensure that you sit well back in the chair. Sustained slumping in a chair is not a good position and puts an abnormal strain on your spinal ligaments, joints and discs.

Walking: Walking is a good exercise. It promotes fitness, improved circulation and general strength. Physically, if you had no walking restriction before surgery this should remain un-altered.

Bathing - when bathing use a non-slip mat in the bath and take care getting in and out of the bath. If you have difficulty with with safe bathing while you are awaiting admission to hospital or after surgery, once your stitches have been removed, and you do not have access to a shower you may need to consider strip washing at a sink for a while until your spine’s stability, strength and mobility improve. You may also consider using adaptive bathing equipment (a ‘bath board’ may help if you cannot stand to get into the bath, or if you have an over-bath shower).

A raised seat and/or rails may help if you experience difficulty getting on/off a toilet because of leg weakness.

You can view/try bathing and other adaptive equipment at Living Centres where an occupational therapist can also advise you (by appointment); alternatively you can self refer to a social services occupational therapist or seek advice at local mobility stores.

If you have arm or hand weakness an occupational therapist may, if indicated, also advise on arm or hand exercises to aid arm/hand function. If hand dexterity is affected there are many small aids on the market that can make a difference in carrying out everyday activities. An occupational therapist, Mobility shop or Living Well Centre can advise on these.

While working at a desk there are many factors which can impact on the health of your neck and the rest of the spine e.g. P.C. monitors should be positioned in front of you rather than to the side and the monitor positioned so that the head is held upright or just slightly flexed and the top of the monitor at or slightly below eye level. Use of bi/ varifocals may require alternative positioning of the screen. Desk surfaces and armrests that are too low or high can cause awkward postures (e.g. hunched shoulders) that impact negatively on the health of the neck and rest of the spine; hands, wrists and forearms should be relatively straight, in line and parallel to the floor. When using the telephone hold the receiver rather than placing it on your shoulder. Consider a hands- free set or speakerphone if you use the telephone a lot. For more comprehensive information go online and search ‘desk ergonomics’ e.g. site osha.gov.

Sex: You can resume sexual activity when you feel comfortable. You can adopt whatever position you prefer, but we recommend either lying on your side or on your back. Sex and disability helpline (telephone number under support groups at the end) can offer you further advice and counselling if you are having difficulties with sexual relationships because of physical problems.

References and sources of further information

Spinal Injury Association: We are the expert, guiding voice for life after spinal cord injury - SIA

Brain and Spine foundation Brain & Spine Foundation

Motability Scheme Home | Motability Scheme

Patient information from Royal College of Surgeons of England Having Surgery — Royal College of Surgeons

All about back and neck pain Causes of Back and Neck Pain | DePuy Synthes

Adapted from King’s College Hospital information leaflets.

 

How to contact us

Neurosurgery Patients 

  • Anita Philip
  • Laura Hughes
  • 0117 414 7532
  • Monday – Friday 7.30am- 4pm,
  • 24 hour answerphone

Orthopaedic Patients 

Physiotherapy Advice Inpatients

Outpatients 

© North Bristol NHS Trust. This edition published December 2023. Review due December 2026. NBT002412.

Degenerative Cervical Myelopathy (DCM)

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Information for patients diagnosed with cervical stenosis or mild myelopathy at North Bristol NHS Trust. 

Many people have a mix of neck pain, arm pain, numbness, or weakness. These symptoms can be distressing, but do not always need urgent medical attention. A exception is Degenerative Cervical Myelopathy (DCM). This is rare but can be serious.

Symptoms include:

  • Clumsy or weak hands.
  • Loss of dexterity (for example difficulty with handwriting, buttoning clothes, or using cutlery).
  • Heaviness or feeling more unsteady with walking.
  • Patches of numbness in the arms, legs, or trunk (torso).
  • Change in your bowel or bladder control.

Myelopathy means the spinal cord is not working properly. It is most often caused by pressure on the cord from changes in the spine as you age (degenerative). Most of the time symptoms develop slowly. In rare cases symptoms can progress suddenly. This can lead to permanent nerve damage or disability.

Spotting this early and having treatment can stop things getting worse.

If you develop new or worsening symptoms (listed above):

Please phone the Neurosurgery Team on 0117 424 7493

The Neurosurgery team will often monitor your symptoms for a period of time. If you are being monitored, you will be given a date when then monitoring period ends. If you have new or worsening symptoms after this date, you should contact your GP. 

© North Bristol NHS Trust. This edition published September 2025. Review due September 2028. NBT003797.

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