Foundation Phase Online Course

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We normally offer patients the opportunity to take part in a pair of meetings called the “Foundation Phase” seminars. This short course has a number of aims, including:

• clarifying the symptoms of ME/CFS
• exploring in depth some of the key ME/CFS self-management areas
• sharing coping strategies between patients coming to the seminars
• finding ways of reducing the impact of the condition

The seminars have been developed with a lot of patient involvement and feedback, and each seminar we run involves sharing knowledge and experience which patients have already developed.

We had to stop offering these seminars in March 2020 to reduce the risk of Covid-19 infection, so we have put together this short online course, so that people can still access the ideas from the Foundation Phase seminars.

The first seminar is split into two parts. The first part clarifies the symptoms, consequences and triggers. The second part looks at activity management, particularly as a way of managing post-exertional malaise.

The second seminar is split into two parts as well. The first part is a short introduction to the impact of stress and the role of stress management. The second part is longer and focusses on sleep management.

We have made the workbooks which support these seminars available as a written guide, which you can choose to read by selecting the "Foundation Phase written guide" from the left hand menu. There is also an example of an activity diary available, and some guidance about completing an activity diary, which you can read by choosing the "Bristol M.E. Service: Activity, Rest and Sleep Diary" from the left hand menu.

Foundation session 1 part 1 

Foundation session 1 part 2 

Foundation session 2 part 1 

Foundation session 2 part 2 

 

 

Foundation Phase Online Course

What should I do if I take an SGLT2-inhibitor - Forxiga (dapagliflozin), Invokana (canagliflozin), Jardiance (empagliflozin), Steglatro (ertugliflozin)?

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Canagliflozin, Dapagliflozin, Empagliflozin and Ertugliflozin are from a class of medication called sodium-glucose co-transporter 2 (SGLT2) inhibitors. Most people taking these medications will have type 2 diabetes but some may have type 1 diabetes. People taking these medications are at increased risk of Diabetic Ketoacidosis (DKA). This could happen even with normal blood glucose levels. DKA is rare in people with type 2 diabetes but it is a serious condition and could be life-threatening.

If you are taking any of these medications and feeling unwell we suggest you stop them till you are feeling better. It is important to keep well hydrated.

If you have symptoms suggestive of DKA (for example, excessive thirst, dehydration, vomiting, fast breathing, feeling drowsy, abdominal pains) we suggest that you stop taking these tablets, keep well hydrated, and follow the advice below:

How to manage your diabetes when unwell

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If you are under the care of NBT diabetes team and become unwell for any reason, it is important that you follow the ‘sick day rules’. 

TREND UK: Type 1 diabetes: what to do when you are ill

TREND UK: Type 2 diabetes: what to do when you are ill 

What should I do if I take an SGLT2-inhibitor  - Forxiga (dapagliflozin), Invokana (canagliflozin), Jardiance (empagliflozin), Steglatro (ertugliflozin)?

If you are still unsure how to manage your diabetes despite looking at the above links, then please do not hesitate to contact the Southmead Diabetes Team on 0117 414 6427 for advice. We are extremely busy at the current time but will get back to you as soon as possible.

If you are not under the care of NBT diabetes please contact your GP or usual care provider

Endometriosis Information for Clinicians

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Information for clinicians 

There are 6 specialist endometriosis clinics per month. Our endometriosis specialist nurse also runs a separate clinic twice a month.

Referral criteria

Inclusion criteria:
• Women with diagnosis of severe endometriosis (defined as endometriosis affecting bowel, bladder, ureter)
• Endometrioma
• Extra pelvic endometriosis e.g. thoracic endometriosis
• Non severe endometriosis refractory to treatment

Exclusion criteria:
• Women with pelvic pain and no endometriosis
• Non-severe endometriosis responding to treatment

Patient pathway

 

 

Useful guidelines

NICE guideline [NG73] Endometriosis: diagnosis and management September 2017

ESHRE guideline Management of women with endometriosis September 2013

What happens at our clinic?

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What happens at our clinic?

On arrival you will be asked to complete a symptom questionnaire.

You will then see a member of the team to discuss these symptoms. You may be asked specific questions about your periods and sex life. The consultation will cover previous investigations and treatments you may have tried, and the effect of your symptoms on your day-to-day life.

Your gynaecologist may ask to examine your abdomen and pelvic area (this involves an internal examination), with the support of a nurse chaperone. There is always privacy to undress and dress. An ultrasound may be recommended; this is often completed transvaginally, via a thin probe inserted into the vagina.

The effect of endometriosis varies hugely between women. Individualised recommendations will then be discussed with you including the risks and benefits of each approach. You will have the opportunity to ask questions.

Below are examples of possible plans of care. One or more may take place in sequence or in parallel.

Investigations

Further investigations may be suggested. This could include blood tests, vaginal swabs to look for infection, biopsies from the womb lining or an MRI (Magnetic Resonance Imaging) scan. More specialist tests may be necessary involving the bladder (e.g. cystoscopy) and/or bowel (e.g. sigmoidoscopy), meaning additional appointments having to be arranged.

Medical Treatments

Medical treatments for endometriosis may be offered. This can involve taking extra hormones or treatments that result in lower hormone levels.

Surgical Treatments

Surgical investigation and treatment may be offered.

Mild to moderate endometriosis can sometimes be treated if discovered at the time of surgery.

Surgery for moderate and severe endometriosis may require a longer operation time, additional surgical support and different pre operative planning, in which case the endometriosis is often treated at a second procedure. This usually involves an overnight stay on our Cotswold ward.

Multi-Disciplinary Meeting (MDM)

When factors make endometriosis surgery complex or high risk, we discuss cases at our Endometriosis MDM. This is a full review of your history, examination findings and the results of any investigations (or previous surgery) with the whole team. We use this to ensure we are recommending the best plan of care and to discuss surgery if proposed.

This meeting also helps us review and guide improvements to our service.

How can I prepare for my appointment?

Some women find it helpful to bring a family member, friend or partner along with them for support. You may find it useful to write down your symptoms or any questions you may have beforehand and take your notes along to the appointment with you.

Endometriosis information for patients

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About endometriosis

Endometriosis is a chronic inflammatory condition driven by the hormones oestrogen and progesterone.

In women with endometriosis, cells similar to those of the womb lining (the endometrium) are found in other parts of the body, most commonly in the pelvis (e.g. on the lining of the wall of the pelvis, in the ovaries, fallopian tubes, bladder, bowel or ligaments supporting the womb). 

These cells undergo cyclical changes (related to the menstrual cycle), where patches of endometriosis thicken and shed but with no way for them to leave the body. This causes inflammation and scar tissue to form, which can lead to pain and discomfort.

Endometriosis is not an infection and it is not contagious. Endometriosis is not cancer.

How common is endometriosis?

Endometriosis affects as many as one in ten women of reproductive age, many of whom will have no symptoms. This is an estimated two million women in the UK. It can affect women from every social group and ethnicity.

What are the symptoms?

• Pelvic pain which is cyclical (related to the menstrual cycle) or non-cyclical (unrelated)
• Excessive pain before/during/after periods
• Pain during sex
• Fertility problems
• Persistent tiredness
• Pain when urinating
• Abnormal bleeding
• Pain with bowel movements

Endometriosis can vary in severity. Some women experience few or no symptoms; other women suffer with many effects. It can affect many aspects of a woman’s life including her general physical health, emotional wellbeing and daily routine.

Types of endometriosis

There are three types of endometriosis:

1. Ovarian endometriosis: This causes ovarian cysts called endometrioma. The cyst is filled with old blood and because of the colour, the cysts are often referred to as ‘chocolate cysts’.

2. Deep endometriosis: The nodules of endometriosis implant at least 5mm below the peritoneum. Structures affected can include the uterosacral ligaments (ligaments supporting the womb), bowel, bladder and ureters.

3. Superficial peritoneal endometriosis: The lesions involve the peritoneum, which is a thin film that cloaks the inner surfaces of the pelvis. The lesions are flat and shallow and do not invade into the spaces underlying the peritoneum.

Some patients have more than one type of disease present in their pelvis.

How is endometriosis diagnosed?

Endometriosis can be diagnosed by having a diagnostic laparoscopy (key hole surgery). This involves passing a thin telescope through a small cut in your umbilicus (navel). It is connected to a video camera and television so that the inside of the pelvis can be examined. This procedure requires a general anaesthetic.

Some types of endometriosis can be diagnosed through ultrasound or other imaging such as an MRI scan.

How is endometriosis treated?

Endometriosis is treated by medical or surgical methods.

Medical therapies include:

1. Painkillers (paracetamol, ibuprofen)
2. Hormones such as the oral conceptive pill, Depo-Provera ™ injection, Nexplanon™ implant and Mirena™ coil or types that cause a temporary and false menopause state (Zoladex™)

Surgery involves removing the deposits. This is mostly completed laparoscopically

ReMemBr Group Research

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Our main branches of research concern:

  • predicting who will develop memory problems such as Mild Cognitive Impairment and Alzheimer's Disease;
  • treating memory problems and neurodegenerative diseases;
  • understanding how different types of memories are stored, and which brain regions underlie this.

We use several techniques for this including:

  • clinical trials and drug studies
  • sleep studies, including polysomnography
  • Magnetic Resonance Imaging (MRI)
  • studies with patients with diseases
  • computational modelling

For more information on the University of Bristol Dementia Research Group visit
www.bristol.ac.uk/translational-health-sciences/research/neurosciences/…

 

Educational Resources

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Educational Resources

 

Welcome to the SWGLH repository for resources to support learning in the field of Genomics

This page will use a combination of signposting to other websites with useful Genomics educational tools and locally developed education and training packages that have open access

 

Content coming soon

Meet the SWGLH Team

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Meet the SWGLH Team

picture of Genomics Lab staff Dr Emma Baple

SWGLH Medical Director and Deputy Clinical Director SWGMSA

Dr Emma Baple

Maggie Williams

SWGLH Operations Director and Head of Bristol Genetics Laboratory Services

Dr Maggie Williams

picture of GLH staff Andrew Parrish

Head of Exeter Genomics Laboratory & Informatics Director

Mr Andy Parrish

The Directorship is supported by the Regional Team:

  • Dr Tom Coates, SWGLH Haematological Malignancies Medical Lead
  • Dr Julia Rankin & Dr Ruth Cleaver, SWGLH Rare Disease Medical Leads
  • Dr Louise Medley, SWGLH Cancer Medical Lead
  • Dr Yves Zhang, SWGLH Pathology Lead
  • Chris Wragg, SWGLH Haematological Malignancies Lead & Deputy Head of Bristol Genetics Laboratory
  • Laura Yarram-Smith,  SWGLH Solid Tumours Lead
  • Ian Berry, SWGLH Rare Disease Lead
  • Jenny Glauert,  SWGLH Technology Laboratory Manager
  • Lorraine Warne, SWGLH Business Lead
  • Brendan Hanrahan, SWGLH Finance and Contracts Manager
  • Mel Watson, SWGLH Education and Training Lead
  • Sharon Thompson, SWGLH Education Coordinator
  • Mel Little, SWGLH Quality Improvement Lead
  • Chris Buxton, SWGLH Informatics Lead

This page was last updated at 20:01 Friday 11th August 2023