Charitable Support Organisations:
- Action Duchenne
- Association of Glycogen Storage Disease (POMPE)
- British Polio Association
- CMT UK (Charcot-Marie-Tooth Disease)
- Duchenne Family Support Group
- Duchenne UK
- FSH-MD Support Group UK
- GAIN (Guillain-Barré & Associated Inflammatory Neuropathies)
- Myaware (Myasthenia Gravis)
- Myositis UK
- Myotonic Dystrophy Support Group
- Myotubular Trust
- Nemaline Myopathy Support Group
- Spinal Muscular Atrophy (SMA) Support UK
- Together for Short Lives