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SWNODN Useful Links

Charitable Support Organisations:

  • Action Duchenne
  • Association of Glycogen Storage Disease (POMPE)
  • British Polio Association
  • CMT UK (Charcot-Marie-Tooth Disease)
  • Duchenne Family Support Group
  • Duchenne UK
  • FSH-MD Support Group UK
  • GAIN (Guillain-Barré & Associated Inflammatory Neuropathies)
  • Myaware (Myasthenia Gravis)
  • Myositis UK
  • Myotonic Dystrophy Support Group
  • Myotubular Trust
  • Nemaline Myopathy Support Group
  • Spinal Muscular Atrophy (SMA) Support UK
  • Together for Short Lives

South West Neuromuscular Operational Delivery Network

  • SWNODN - Get Involved (Patients & Families)
  • SWNODN - Patient Feedback
  • SWNODN Events
  • SWNODN Patients Know Best (PKB)
  • SWNODN Publications
  • SWNODN Virtual Advisor/FAQs
  • SWNODN Useful Links

SWNODN Useful Links

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