SWNODN Virtual Advisor/FAQs

What does a Neuromuscular Care Advisor do?

The Neuromuscular Care Advisors are part of a multi-disciplinary team who specialise in neuromuscular conditions.  There are four Advisors based across the South West.  You may meet them in one of the specialist clinics or be referred to them by your own GP or other healthcare professional.  You can also contact them during office hours throughout the week if you need advice.  Please read this leaflet to find out who your Advisor is and how to contact them PDF iconSWNODN NM Advisor Role Leaflet Aug2017

How can I access the Neuromuscular Advisor service?

Patients must have a confirmed diagnosis of a neuromuscular condition covered by the network and live in the South West (excluding Dorset). 

Any healthcare professional can refer a patient to a Neuromuscular Advisor by completing the PDF iconSWNODN Advisor REFERRAL FORM.pdf

If you are an individual with a neuromuscular condition you can contact your Neuromuscular Advisor if you have a specific enquiry or need help with a matter relating to your condition. Advisor’s work Monday to Friday during normal office hours. You can either call them directly if you have their number or call the Network Office.  Further information is available in this leaflet: PDF iconSWNODN NM Advisor Role Leaflet Aug2017

What Services are available in my area?

We are working on putting together a number of Resource Packs which detail support available in each county of the South West of England. Please let us know of any services in your area that we have missed off and you think would be useful to other people.

  • Bath and North East Somerset
  • Bristol
  • Cornwall
  • Devon
  • Gloucestershire
  • North Somerset
  • South Gloucestershire
  • Swindon
  • Wiltshire

I'm a carer, what support is available for carers in my area?

If you are new to caring, you may be feeling overwhelmed and unsure where to start. There are many organisations across the South West that can help guide you through the maze of what support is out there. Or it could be that the person you care for is starting to need more care. As things change you may find you have new questions or just need someone to share your feelings with.

Many carers do not consider themselves to be a carer – they are just looking after someone in their family who needs help and getting on with what needs to be done. They often don’t know what support is available and struggle on alone.

Support organisations for carers may be able to help with the following:

  • Benefits and other financial matters affecting carers, including debt
  • Breaks from caring and other ways of looking after yourself
  • Juggling work and care
  • Where to start in getting help at home
  • Support for carers in hospitals and GP surgeries
  • Aids and adaptations
  • Transport and travel issues
  • Guidance with form filling
  • Managing other people’s affairs
  • Accessing training, volunteering or work
  • Provide Carers Emergency Cards
  • One to one support
  • Carers groups
  • Many also offer specialist support to young carers and young adult carers.

For further information about national and local organisations we have put together a Carer Support Contacts Sheet: PDF iconSWNODN Carer Support Contacts Aug2017.pdf.