Bristol CFS/ME Service and Coronavirus
We have continued to offer outpatient appointments by converting them to telephone appointments. We are now able to offer video consultations as an alternative to telephone. Please do not come to the clinic, but make sure that you are available by telephone at the time of your appointment. We will call you as close to your appointment time as possible.
If you need to contact us, you may prefer to email us on email@example.com as our phones are very busy at present.
We are now able to offer groups using online video conferencing, but we have no plans to offer face-to-face groups at present.
Covid-19 and CFS/ME
At present, we are advising our patients to follow the most up-to-date Government advice about infection control. We are unable to offer more specific advice, because there is a lack of good evidence regarding ME/CFS and Covid-19. Some people with ME/CFS will be aware that when they have any infection, they tend to experience worse symptoms and these take some time to settle. However it is important to be aware that the immune system is still functioning and will be dealing with the infection. Continuing to manage your health through activity management, supportive routines, appropriate rest, maintaining contact with others and also managing stress can help not only CFS/ME but any infection, the recovery period and the impact of isolation.
For more information on Coronavirus, please visit www.nhs.uk/coronavirus
Bristol CFS/ME Service is a specialist NHS Service for people with Chronic Fatigue Syndrome/ME which has been offering evidence-based care since 2004.
We offer an outpatient service to people living in Bristol, North Somerset, and Gloucestershire. We can offer a combination of telephone and face-to-face contact, and part of our role is to advise and support other Health Care Professionals in the clinical management of people with CFS/ME.
The clinical team includes Occupational Therapists, Physiotherapists and Psychologists, as we offer a multidisciplinary team approach. We do not currently employ a medic as there are no evidence-based medications for CFS/ME which cannot be prescribed by a GP. We maintain close links with other hospital specialties within North Bristol NHS Trust and at United Bristol Hospital NHS Foundation Trust.
Find our more about referral information including the checklist of required blood tests.
The Bristol Chronic Fatigue Syndrome/ME Service has ongoing involvement in research projects, including a study led by Dr Jade Thai at the University of Bristol which is now in its second phase. Dr Thai and her research colleagues have just finished recruiting people living with CFS/ME who took part in a memory study which uses a functional MRI scanner.
We have also just completed data collection for another study which aims to understand more about how people living with CFS/ME complete a commonly used fatigue questionnaire, the Chalder Fatigue Scale. Some of our patients have found this questionnaire difficult to complete, so we invited patients to take part in this qualitative study which will help us get a fuller understanding of these difficulties. This research will help us to improve the questionnaire, or to choose an alternative questionnaire which patients find easier to complete. We are currently analysing the data, and we are very grateful to the patients who gave their time to take part.
We would like to bring your attention to the Decode ME study run by the ME/CFS Biomedical Partnership, which is a large DNA study aiming to recruit 20,000 participants. To find out more about the study, visit www.decodeme.org.uk/
We would also like to draw your attention to a new international research study looking at the impact of ME/CFS (previously known as CFS/ME) on the quality of life of both patients and their family members. This is a short and simple online survey designed to be accessible to all adults 18+, including severely affected patients.
There are two questionnaires in the survey, one for the patient and one for a life partner or family member. If you cannot be together to complete it, you can save and return. People with ME/CFS piloting the survey found each questionnaire only took about 5 minutes to complete.
Please use this link to the Family Impact Study survey.
Please share widely to encourage others to participate. The greater the reach of this survey the more we can improve our international understanding of how ME/CFS impacts patients and their family members.