Bristol M.E. Service News

Bristol M.E. Service and the 2021 NICE Guideline

We welcome the publication of the update NICE Guideline, and acknowledge the huge amount of work which has gone in to producing this expanded and updated Guideline. There is a detailed statement about the new Guideline produced by BACME, and our Service fully supports the position which BACME have taken regarding this new advice: https://www.bacme.info/sites/bacme.info/files/BACME%20Press%20Statement%20NICE%20Guideline%20publication%20Oct%202021.pdf

Bristol M.E. Service and Coronavirus

We have continued to offer outpatient appointments by converting them to telephone appointments. We are now able to offer video consultations as an alternative to telephone. Please do not come to the clinic, but make sure that you are available by telephone at the time of your appointment. We will call you as close to your appointment time as possible.

If you need to contact us, you may prefer to email us on BristolME@nbt.nhs.uk as our phone can be busy.

We are now able to offer groups using online video conferencing, but we have no plans to offer face-to-face groups at present.

Covid-19 and M.E./CFS

At present, we are advising our patients to follow the most up-to-date Government advice about infection control. We are unable to offer more specific advice, because there is a lack of good evidence regarding M.E./CFS and Covid-19. Some people with M.E./CFS will be aware that when they have any infection, they tend to experience worse symptoms and these take some time to settle. However it is important to be aware that the immune system is still functioning and will be dealing with the infection.  Continuing to manage your health through activity management, supportive routines, appropriate rest, maintaining contact with others  and also managing stress can help not only CFS/ME but any infection, the recovery period and the impact of isolation.

For more information on Coronavirus, please visit www.nhs.uk/coronavirus

Bristol M.E. Service is a specialist NHS Service for people with M.E./Chronic Fatigue Syndrome which has been offering evidence-based care since 2004.

We offer an outpatient service to people living in Bristol, North Somerset, and Gloucestershire. We can offer a combination of telephone, video and face-to-face contact, and part of our role is to advise and support other Health Care Professionals in the clinical management of people with M.E./CFS.

The clinical team includes Occupational Therapists, Physiotherapists and Psychologists, as we offer a multidisciplinary team approach. We do not currently employ a medic as there are no evidence-based medications for M.E./CFS which cannot be prescribed by a GP. We maintain close links with other hospital specialties within North Bristol NHS Trust and at United Bristol Hospital NHS Foundation Trust.

Find our more about referral information including the checklist of required blood tests.

M.E./CFS Research

The Bristol M.E. Service has ongoing involvement in research projects, including a study led by Dr Jade Thai at the University of Bristol which has now completed its second phase. Dr Thai and her research colleagues have finished recruiting people living with M.E./CFS who took part in a memory study which uses a functional MRI scanner.

We have also just completed data collection for another study which aims to understand more about how people living with M.E./CFS complete a commonly used fatigue questionnaire, the Chalder Fatigue Scale. Some of our patients have found this questionnaire difficult to complete, so we invited patients to take part in this qualitative study which will help us get a fuller understanding of these difficulties. This research will help us to improve the questionnaire, or to choose an alternative questionnaire which patients find easier to complete. We are currently analysing the data, and we are very grateful to the patients who gave their time to take part.

We would like to bring your attention to the Decode ME study run by the ME/CFS Biomedical Partnership, which is a large DNA study aiming to recruit 20,000 participants. To find out more about the study, visit www.decodeme.org.uk/

Contact Bristol M.E. Service

Bristol M.E. Service
The Lodge
Cossham Hospital
Lodge Road
Bristol
BS15 1LF

Telephone: 0117 4145192
Fax: 0117 4145190

Email: bristolme@nbt.nhs.uk

Bristol M.E. Service News